SOFT UK
Trisomy Family StoriesEpisodes
Episodes of Trisomy Family Stories
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In today's podcast we are talking with Mary Wasacz about her journey with Cathy Anne. Mary recounts Cathy Anne's story and her diagnosis of Trisomy 18, and how she and her husband John gave her normalcy and love during her short life.Mary w
In support of Baby Loss Awareness Week 2023 we are talking with Kate Sonley, mummy to Amber.Kate bravely talks about her story, sharing the ins and outs of her journey.Reach out at [email protected] support, contact [email protected].
Ahead of the annual Scottish Family Day we interviewed one of our longstanding parents Demi Powell who shared her story about Connor, her baby boy who was diagnosed with Trisomy 18, 22 years ago. It was a great insight to how she has found th
The podcast today is part of our series, chatting to partner organisations to find out more about what they do. This podcast welcomes Nicola Enoch, joining us from Positive about Down Syndrome and she is their Founder & CEO. As a down's syndrom
We spoke to Mandy Nelson, mother to Amari, who has Trisomy 18 and who recently became a mother to Dante. In this episode, Mandy shares her heartfelt journey from her pregnancy with Amari, to the present day, where Amari is now a thriving 3.5-ye
We spoke to Becky Smith, Mum to Freddie who had trisomy 18 and more recently, she became Mum to Jaxon, her Rainbow baby. Becky opens up about her overwhelming fears and anxiety throughout the pregnancy, revealing how she cautiously began prepar
Join us for an insightful episode of the SOFT UK podcast as we speak with Jess Scott, whose life has been profoundly influenced as a rainbow baby after the loss of her sister, Sarah, to Patau syndrome. Listen to her remarkable journey, and how
Join us for an enlightening discussion with Beth Hughes, a trainee Genetic Counselor, as we delve into the fascinating world of genetic testing and ethics. In this episode, we explore a range of intriguing topics, including the cutting-edge adv
In our latest podcast episode, we had the pleasure of speaking with Tina, one of our dedicated volunteers at SOFT UK. Tina has taken on various roles with us since she first got involved, and in our conversation, she shares what she's learned
Join us for a heartfelt conversation with Raliene and Josh Banks, parents of Faith, a beautiful soul diagnosed with Trisomy 13 in 2022. In this inspiring dialogue, we explore the untold perspective of a grieving father, gain invaluable insights
Join us for a heartfelt conversation with Raliene and Josh Banks, parents of Faith, a beautiful soul diagnosed with Trisomy 13 in 2022. In this inspiring dialogue, we explore the untold perspective of a grieving father, gain invaluable insights
We spoke to Emma Belle, mother of Willow and founder of TFMR Mammas and #TFMRAwarenessDay. She put it beautifully when she told us why TFMR awareness day is so important. She said: “...so that anyone faced with this decision or having gone thro
We spoke to Simone Adams, mother to Maebh, who has trisomy 18 and is affected by some of the issues highlighted by Deaf Awareness week. She shares how her daughter's hearing loss was discovered and how it affects Maebh's day-to-day life.Reach
In this episode, we had the privilege of speaking to Marie about her personal journey through TFMR and how she has been coping with the help of her husband. She shared with us some surprising insights she gained from the experience that she hop
We spoke to Richard, Sarah's brother, who passed away from Patau's syndrome (trisomy 13) in 1989. He shared his story and what he could remember as a 3 year old at the time. He also shared a powerful message about mental health and finding acce
We spoke to Sarah Dowdall, mother to Emilia, with mosaic trisomy 18 about the journey to diagnosis as well as how she copes with the uncertainty of what this will mean for her daughter in the future.Reach out at [email protected] support
Listen to the roundtable discussion about what it was like working with EastEnders on the Trisomy 18: Edwards syndrome storyline. We’re joined by some of the people who were directly involved in talking to producers, actors and story researcher
We had a great chat with Chris O' Toole about his daughter Maria's story and what he has learnt 30 one years later. His perspective as a Dad, urging people to reach out for support was really touching.Reach out at [email protected] suppo
We spoke to our new Trisomy Advocate, Sarah Bowell, about her career background and what attracted her to the role at SOFT. To hear how she hopes to support families and what she is already working on, tune in!Reach out at [email protected]
Join SOFT UK and the team as they discuss their upcoming fundraiser. They will be taking part in the Royal Parks Half Marathon and their training begins today!Check out our fundraising page here: https://www.justgiving.com/campaign/royalparkss
Following the recent storyline in Eastenders, where a couple have received a diagnosis of Trisomy 18, we wanted to answer a question that may arise from this. Can HIV cause Trisomy 13 or Trisomy 18? In the story, the mothers partner has been
We chatted with Brandon Huxhold, Fiona’s Dad, from Illinois in the US. He told us the extraordinary story about their daughter who has mosaic trisomy 18 and turns 2 in a few weeks. He describes her as a loving child whose siblings adore her. He
We chat to Sophie Peet from Genetic Alliance to hear more about what their charity does and about the Rare Disease day, celebrated on the last day of February. Listen to this conversation as she explains this year's theme and what they hope to
We speak to our newest Professional Advisor, Jenny Hudson. She is a chiropractor with an interest in breastfeeding support about we hear how she came to be involved with SOFT and how she hopes to make a difference to the charity.To share your
We speak to our newest Professional Advisor, Jenny Hudson. She is a chiropractor with an interest in breastfeeding support about we hear how she came to be involved with SOFT and how she hopes to make a difference to the charity.
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