Episode Transcript
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0:00
No one ever wants to hear a cancer diagnosis,
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that a family member with cancer can't get to
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treatment, or that a friend with cancer can't
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pay their medical bills. At the American Cancer
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Society, we're working to make sure no
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Cancer Society. Every cancer, every
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life.
0:32
Welcome to The Referral. I'm Dr. Curran,
0:34
a surgeon in the UK. This is
0:36
the podcast to go to if you want
0:39
actionable, evidence- based information
0:41
to help improve your life. On
0:43
today's podcast episode, we're gonna be talking
0:46
about invisible conditions. Now, it's
0:48
very likely that today, if you've been out
0:50
and about, you've been walking past people who
0:52
suffer with this condition, inflammatory
0:55
bowel disease. This is an umbrella term for
0:57
bowel conditions like ulcerative colitis
1:00
and Crohn's disease. And today, we're
1:02
gonna be joined by Misha Moinurad,
1:04
also known as Mr. Colitis Crohn's Online.
1:07
And he has almost 5.5 million
1:10
followers across all social media platforms.
1:12
And we're gonna be talking about how to navigate
1:15
life with a stoma, how to live a
1:17
fuller life with a chronic invisible
1:19
condition.
1:20
I had to change the way I viewed
1:23
my body and how I viewed a stoma. And
1:25
like you said, it's enabled me and
1:27
not disabled me. And obviously, you'll
1:29
get your chance to ask me a question in CrowdScience.
1:33
If you've got a question you want me to answer, head
1:35
over to thereferralpod.com and
1:37
shoot me a message. And excitingly, I'm gonna
1:39
be answering even more of your questions on
1:41
CrowdScience Extra. Just head over to
1:43
the Referral Show page on Apple Podcasts and
1:46
hit Try Free to start your free
1:48
trial today. And also coming up, we've
1:50
got If It Ducks
1:50
Like A Quack. This is a segment where I
1:52
completely decimate these nonsense
1:55
myths that you see online. But first, we
1:57
have What The Health. Let's take a quick
1:59
look at
3:59
So if you've been listening to any news
4:02
over the past couple of weeks, you've more than
4:04
likely heard about the Titan
4:06
submersible which went down to see the Titanic
4:09
shipwreck and the tragedy
4:11
that followed after that where the submersible
4:14
imploded and these people lost
4:17
their lives. I've had a few
4:19
messages from people online asking me
4:22
about how they lost their life and
4:25
if they felt any pain while
4:27
the submersible collapsed or imploded.
4:30
Now, this is quite a sensitive topic but
4:33
from a purely biological standpoint,
4:35
there is some science which may help explain
4:38
why they probably didn't feel any pain.
4:41
So to process pain, our
4:44
brain requires around 100 milliseconds
4:46
to actually, you know, process
4:48
that sensory information
4:48
about pain. And
4:51
to process the visual inputs,
4:53
our eyes need about 13 milliseconds.
4:56
The implosion we are led to believe
4:59
took less than one millisecond.
5:01
So it's likely for these people
5:03
in the submersible, it was instant light
5:06
out without any knowledge of it without
5:08
any pain.
5:13
So as a busy surgeon trying to balance
5:15
a surgical career but also a social media
5:18
career, I've got lots on my plate. I've
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really found that using Notion AI
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6:14
Why were medieval priests
6:16
so worried that women were going to seduce men
6:18
with fish that they'd kept in their pants? Who
6:21
was the first gay activist?
6:23
And what on earth does the expression sneezing
6:26
in the cabbage mean? I'll tell you, it's
6:28
not a cookery technique. That's for sure. Join
6:30
me, Kate Lister, on Betwixt the Sheets,
6:32
the history of sex scandal in society,
6:35
a podcast where we will be bed hopping throughout
6:37
time and civilization to
6:39
bring you the quirkiest and kinkiest stories
6:42
from history. What more could you
6:44
possibly want? Listen to Betwixt
6:46
the Sheets today, wherever it is that you get your
6:48
podcasts. A podcast by
6:50
History Hit.
6:57
Today's guest, Mr. Colitis
6:59
Crohn's, Misha Moynrad, is
7:01
an inspiring person. This
7:03
man almost lost his life at
7:06
the hands of inflammatory bowel disease and
7:08
he was saved and he was given
7:10
a stoma which gave him a new
7:12
lease of life. He is an incredible
7:15
influencer and inspiration to people
7:17
out there living with invisible conditions, with
7:20
chronic conditions and certainly with
7:22
stomas in the way that he
7:24
basically does everything
7:26
and anything he wants to. And
7:28
today I want to speak to Misha about how to live
7:31
life to the fullest with a stoma.
7:34
Misha, thank you very much for joining me
7:36
here. I started TikTok in 2019
7:38
and then I think very early 2020, I started
7:41
following you and we
7:45
were both following each other.
7:47
What were you doing on TikTok
7:49
and what do you do online? So
7:52
like yourself, I started pushing short
7:55
form video content
7:57
in 2019 in lockdown because
8:00
couldn't do my job. So I thought, where
8:02
can I put my energy? And it was
8:04
social media, I really lent into that. And
8:07
the idea for me creating content, and it
8:09
still lives within the thoughts of what I do
8:11
is to help people. It's to help
8:13
people that have got a medical condition like
8:15
me and are living with an invisible condition.
8:18
But it's also to educate
8:20
people that haven't got it and don't
8:22
understand it. So every day
8:24
I create content around the raw reality
8:27
of what I'm going through with a stoma. Yeah,
8:29
that's brilliant. And you're improving
8:31
directly people's awareness, but also
8:34
health literacy of people with
8:36
stomas as well. Yeah, it's getting people to understand
8:38
the little things and the tips and tricks, and
8:41
also empowering them to show you know, you
8:43
have got this, but it's not a limitation.
8:46
It's something that you can do amazing
8:48
things with still, you just need to be
8:50
strong enough and almost mentally resilient
8:53
enough to take those steps in the right direction. A
8:55
lot of people have no idea what a stoma
8:58
is. It's literally an opening,
9:00
usually on the surface of the skin on their tummy, where
9:04
a piece of urine testing often is
9:06
brought out to the surface of your skin to divert
9:09
feces or urine or other waste
9:12
matter. You have that, but
9:14
just looking at you, the average person on the street would
9:17
not know. How did
9:18
you come to have a stoma? So
9:21
my journey kind of started in 2013. I
9:23
was at university studying high performance
9:26
coaching nutrition, like just a normal student
9:28
going out five or six times a week drinking
9:31
a lot. And I
9:33
just started to feel a bit unwell, just wasn't well
9:35
at all. I have three GPs
9:38
come and visit me at home. And they actually diagnosed
9:40
me with gastroenteritis, which
9:43
is essentially a stomach bug. Yeah, yeah.
9:45
In fiction, inflammation of the bowel. And
9:48
I kind of thought, okay, I'll listen to my doctors.
9:51
This is what it is. And left it following
9:54
week. And in this time, I was being
9:56
sick a lot. I was bringing up a lot of bio. I
9:59
was just really feeling. I'm well. My
10:01
dad come and took one look at me and was like,
10:04
we're going to the hospital right now. So obviously he could
10:06
see something was a little bit more
10:08
than what my body was giving on. So
10:11
we went to hospital after that week and
10:14
I got to the reception desk at Southampton
10:16
General. I remember looking straight
10:18
into the receptionist's size, sort of
10:20
explaining what was going on. And
10:23
I just passed out. I actually knocked one
10:25
of my teeth out on the floor. I
10:27
was put into an induced coma
10:30
for about three and a half weeks. And
10:32
at that point I was given about 20%. So it was
10:35
a real touch and go time for me in terms of my
10:37
health. So when you were in a coma, you still
10:40
hadn't had an operation? No.
10:42
So my health was in a really good place
10:45
before that. And basically what had happened
10:47
actually had a ruptured appendix. So
10:49
that was the first sort of battle I had
10:51
with NFT medical in my life.
10:53
And then it was only following
10:56
that after I woke up and recovered
10:58
after the night, I'd say probably eight to
11:00
nine months after that initial surgery
11:02
that I actually recovered. And
11:05
then I started getting symptoms of bowel disease. And
11:08
what the doctors said is because I was so inflamed
11:11
inside and I was getting
11:13
put down to theatre for eight or nine hours
11:15
a day over the course of that coma, they
11:18
were taking all of my stuff out,
11:20
washing it and then vac packing
11:22
it back in position. And then I would go
11:25
back. I mean, by the sounds of it, I don't
11:27
know your specific surgical details,
11:29
but it sounds like you had
11:31
a laparotomy. So a big cut in
11:34
the middle of your tummy, literally opening
11:36
you up like a suitcase. So through
11:38
the skin, through the muscle into your
11:41
abdominal cavity,
11:42
and your intestines were out on show. And
11:45
eventually once you were
11:47
diagnosed with Crohn's colitis,
11:50
you had your entire colon removed.
11:53
Exactly that. So I tried medication
11:55
for around four years, and
11:58
it just didn't actually give me any relief.
13:59
sex? How am I going to open up to my
14:02
loved one? How am I going to be in a relationship?
14:04
How am I going to function? Now
14:07
you've got a fiance now, you recently proposed. Congratulations.
14:10
Thank you very much. Come back from Maldives. But
14:13
when you had a stoma first,
14:16
were you single with a stoma and then got into a
14:18
relationship? Or were you already
14:20
going out with this person pre-stoma? No.
14:23
So I think one of the things going
14:25
back to what you said earlier about that, sort
14:27
of like an instant negative association
14:30
with having something different on your body. I
14:32
think the thing with a stoma is
14:34
it's taught very much end of line.
14:37
So doctors, medical professionals
14:39
often say, if
14:40
things don't go right, you'll need
14:43
a stoma, which in a patient's mind,
14:45
or anyone's mind, it's already categorised
14:48
as negative. Yeah, seems like a bad thing. So
14:50
then you've planted the seed there that
14:52
it's a bad thing. So immediately, whenever you talk
14:54
about that now, it's going to be a negative thing. And that's why
14:56
I try and show online that it's not the
14:59
end. It's not positive. Yeah, it's an opening. It's a new
15:01
start. It's a fresh beginning. I guess, like, you
15:03
know, all those things that you spoke about from, am
15:05
I going to be able to continue
15:08
with my work, relationships, all
15:10
of those things, like, they're definitely impacted.
15:12
You have to be careful. I have to be mindful
15:15
of things I do because I'm at a risk
15:17
of opening up other medical problems like
15:19
herniations and prolapses and all those things.
15:22
But in terms of like, sex and
15:24
people don't have to do normal things. It's
15:27
completely like anyone else. It's the same thing. It's
15:29
just a small bag on your stomach. I always
15:31
say to people that ask me about relationships and stuff
15:34
like that. If you find the right person,
15:36
they'll love you for you. They're not
15:38
interested about whether you've got a stoma
15:40
or whether you're missing an arm or whether you've got a medical
15:43
condition. It's part of you, right? I think in
15:45
a very, very strange way,
15:47
that it's almost an incredible discriminator
15:50
of someone who really loves you. Yeah, it's
15:53
an amazing filter. Yeah, exactly.
15:55
So you can just filter off anyone
15:57
who, you know, has a negative association.
15:59
and not interested, she knew what she was
16:02
getting into as such, because I've always been from the
16:04
minute I started social media, very
16:06
open, honest, and showed
16:08
my reality, right? Yeah, 100%. And that's
16:10
why we started following each
16:12
other, and we did lots of stuff about stomas. And
16:16
what I wanted to ask is, obviously, going back to
16:18
your history where you were suffering with
16:20
these weeks of tummy
16:22
pain, and you were diagnosed with a ruptured appendix,
16:25
and it took a while for you to be diagnosed.
16:28
And this is something,
16:29
not to this extent that you experience,
16:32
but this is something I see quite often. I
16:35
do clinics with bowel patients who've
16:37
got bowel problems, diarrhea, constipation,
16:39
abdominal pain, bloating. And
16:42
a lot of patients I see as a general
16:44
surgeon, they have been self-diagnosed
16:47
with IBS, irritable bowel syndrome,
16:50
or their GP or someone has told them
16:52
they've got irritable bowel syndrome, maybe just looking
16:54
up online or based on just symptoms. And
16:56
I see them, and I'm thinking,
16:59
you could easily have inflammatory bowel
17:01
disease, which encompasses Crohn's or ulcerative
17:03
colitis. And that's the thing. If
17:06
you have symptoms like you experienced, maybe
17:08
unexpected weight loss or changing
17:10
your bowel habit to diarrhea or constipation,
17:13
bleeding, get it checked out, and
17:15
don't just say it's IBS. I mean,
17:18
how many months or weeks before you went
17:20
to hospital did you have symptoms for? That's a really
17:22
good question. Because of stuff
17:25
like I remember very vividly
17:27
looking on the edge of
17:29
the buses and the underground of
17:32
the cancer awareness post,
17:34
if you're losing blood, come
17:36
forward, go and see a doctor, it
17:39
was almost too scary for me
17:41
to do that. So I probably left it longer than
17:43
I should. So you probably had symptoms for
17:45
months before. Yeah, and I left it because
17:47
I was just worried. I
17:50
think quite often as a patient and as a
17:52
person, you kind of see the medical
17:54
industry as against you, as opposed to
17:56
for you. So you're scared because
17:58
you know that there could be the news that comes to
18:01
you, you've got the big C. Devastating news, yeah. But
18:03
the fact of the matter is, the quicker you act
18:05
upon something like that, a lot of these conditions are very
18:07
treatable. So it's kind of like making sure
18:09
that you do go forward. And I had loads of testing.
18:12
I had more fingers than I've got on my
18:14
hands and my bum, which isn't fun,
18:17
but it's part of looking after
18:19
yourself. And the more that we talk
18:21
about this and open up the conversation and show
18:23
the realities, it de-stigmatize, but also
18:26
takes away the fear. And I think that's one of
18:28
the biggest things that someone can watch one of my videos
18:29
and say, actually having
18:32
a stoma isn't as scary as it looks. Going
18:34
for these tests isn't as scary as it looks.
18:37
They could come forward sooner and it could save
18:39
their life or give them more longevity
18:42
in their life. I mean, you were a fitness
18:44
professional before your surgery. You
18:46
still are a fitness professional now, as well as
18:48
a huge influencer. And you
18:50
deadlift, you lift heavy weights. What's
18:53
your take on weightlifting,
18:55
strenuous activity after
18:58
stoma surgery and a major abdominal
18:59
surgery? So when I was in hospital
19:02
again, and remember this clear as day, there was
19:04
a nurse that came in to see me and
19:07
she said, you will never have a physical job
19:09
again. Yeah, so that was literally the word
19:11
she said. There was also another nurse at
19:13
the same time that said, you're never
19:15
gonna have a six pack like Peter Andre. And
19:18
I was like, there's certain things
19:20
you don't say to a young bloke
19:22
who's just come off the back of a massive
19:24
surgery who was really into the health of fitness.
19:27
And they're led there about five and a half stone. That's a really weird thing
19:29
to say. Really weird thing to say. But instead
19:32
of me looking at that and seeing
19:34
it as something like, maybe she's right. I'm not
19:36
gonna do anything like this. It actually turned
19:38
something on in me. It's a challenge. We're thinking,
19:41
I'm gonna prove you wrong. And that's exactly what
19:43
I done. Before stepping into social
19:45
media full time and having my
19:47
businesses within social media now, I
19:50
was a rehab coach. So if you had a
19:53
triple heart bypass, a hip replacement, a
19:55
knee replacement, a stoma fitted, you
19:58
would come to the clinic that I was at and then I would rehab. have you
20:00
back to full health, even preoperative, postoperative.
20:02
So I know anatomy and
20:05
physiology and the body and how amazing
20:07
the body can be. And I've
20:09
always pushed those boundaries but safely. So
20:12
I know that I'm at a higher risk of a prolapse
20:14
or a herniation. I know that I can be more
20:16
fatigued than the average person sometimes. The
20:18
reality is although I've got a stoma
20:20
now, it's not the end of my journey. It's
20:23
just another part of my journey. It doesn't mean I'm
20:25
cured. And that's what I try and express
20:28
to people getting a stoma
20:30
isn't always clean sailing for everyone. It's not gonna
20:32
work for everyone because like you said, surgery
20:35
comes with complications and you've got to be
20:37
aware of that. But for me, I've
20:40
been lucky enough to sort of
20:42
get through it quite complication free. I mean,
20:44
that's the thing with Crohn's disease, as
20:46
of right now in 2023, there is no cure. We
20:50
can help to reduce symptoms and
20:52
sometimes it can go
20:55
into quiescence where it just quietens down
20:57
to a point where you may have minimal symptoms,
20:59
but it's a chronic condition which
21:02
we can manage with removing pieces
21:04
of bowel, et cetera. But actually there's
21:06
no curable thing for it. And you
21:08
mentioned the prolapse and the herniation. And
21:11
that's what I wanted to talk about with you specifically.
21:14
From my own experience, the
21:16
literature and speaking to all my colleagues,
21:18
colorectal surgeons,
21:20
I don't wanna say 100%, but I would say
21:23
the majority, if not close to 100% of people with stomas
21:27
will have a parastomal hernia,
21:29
which means a hernia, something from the
21:31
inside of their abdomen poking out next
21:34
to their stoma. Have you experienced
21:36
that and with people that you coach and rehab?
21:38
So I'm very lucky in the fact that I
21:40
haven't got one, even though I lift and stuff, but obviously
21:43
I designed a brace myself, which
21:45
I wear religiously. I've got one on right now, so I wear
21:47
it all day every day, particularly when I'm training and stuff.
21:50
But like you said, the percentages
21:53
are on the bad side of that happening. And
21:56
you can't
21:57
control everything within your health.
21:59
That's the fact of the matter is you can do as much
22:02
as you can but you can get a hernia or
22:04
a prolapse like that from sneezing, coughing.
22:07
Most patients I speak to, that's how they got their hernia
22:10
is from sneezing or coughing or getting out of bed incorrectly.
22:12
I always tell people to
22:14
roll to the side. Roll and brace
22:17
yourself. Yeah, brace yourself. But effectively,
22:20
it's
22:21
normally a case
22:22
of not if it will happen, it's
22:24
when. Yeah, 100%. Yeah,
22:27
like you said, hernia
22:30
belts, you've got an incredible one that you've designed.
22:33
Bracing yourself and probably
22:35
initially after surgery being mindful of
22:37
heavy lifting but then afterwards, probably
22:40
essentially do what you want. Live your life. And
22:42
I think what you said there about living your life
22:44
is something that I feel the medical industry needs to get
22:46
better at explaining to people because what
22:49
they can do is they can tell patients
22:51
not to eat certain things,
22:52
not to do certain things. People
22:55
like me will always push those
22:57
boundaries and show them
22:59
and prove them wrong that you can still do these amazing
23:01
things. Like I've done skydives, I go swimming all the time,
23:03
I do the gym six times a week, I very
23:05
much live my life but some people
23:07
sadly take that word as gospel
23:10
and then
23:11
they are imprisoned even though they've
23:13
had their surgery and they should
23:16
be living their life, they are imprisoned
23:18
with what they've been told. I think exactly.
23:20
The thing is, there's bespoke management for every
23:22
patient. And you touched there on an important
23:26
thing there, diet as well with stonemas.
23:28
How is your diet, is it restricted in any way?
23:31
No. Again, I kind of
23:33
went against the grain because when I left hospital,
23:35
they gave me a pamphlet and it was like
23:37
you basically are going to be eating beige for
23:39
the rest of your life. And I was like from
23:41
a health standpoint,
23:44
all the minerals, vitamins and everything that you
23:46
get from certain foods are not within
23:48
that palate. I was like, this isn't sustainable,
23:51
it affects my bone density, my
23:53
development of muscle and everything. I was like, this can't
23:55
be right. So the way that I done it, I
23:58
pulled my diet right back.
23:59
I started off with tinned pears, rice
24:02
and chicken, plain. That's all I had. And
24:05
I ate that for about
24:06
two or three months. And then what I'd done
24:08
is I introduced food very slowly
24:10
back into my diet. And I just was
24:13
very cautious about how my body responded.
24:15
So I could eat something, it would be
24:18
positive, it would be fine, I'd try a little bit
24:20
more. And over the course
24:22
of the years and years of doing that, I
24:24
found that the things I have to be mindful of is
24:27
chewing certain foods, making
24:31
sure I use the chew 20
24:33
times kind of rule on certain foods. I've
24:35
also learned that very dense fibrous
24:38
foods are just not good for me, I need
24:40
to stay away from them because they cause me like discomfort
24:43
and blocking because the end of the stoma is very
24:45
small. It's like the size of the end of my small
24:47
finger. And it narrows over time as well. So
24:50
all the food that you put in your mouth has got to go
24:52
through that, it's got to come out of that hole. So
24:55
quite often I like empty
24:57
my bag or I feel in my bag and I'm like, I
24:59
can literally feel like a bit of sweet corn. Yeah,
25:02
so it's important that I choose stuff, otherwise
25:04
it quite literally comes out and goes in.
25:06
Yeah, so you're not getting the nutrients from that. Exactly
25:08
that. I think
25:10
the important point there is that again,
25:12
it's bespoke for the person. So
25:15
if something works for you, it may not work for someone
25:18
else. Like you've been brave in your choices, but
25:20
you've been smart in the way you've done it. You've
25:23
added in things slowly and that's what I would advise
25:25
for anyone. Even people with IBS
25:28
sometimes ask me, I've been told I can't eat
25:30
fiber and you can. And in fact, you should
25:32
eat fiber because your gut bacteria need it, but
25:35
it's slowly
25:37
and gently adding in things and seeing
25:39
what works, what
25:40
doesn't work. I think as well,
25:43
the best friend for
25:45
a person who's got a stoma is the stomanous.
25:48
It's not your surgeon who they can do operations,
25:50
they can refashion your stoma, recite
25:53
it, put it in a different position fix your hernias,
25:55
whatever. Great, they've done their bit. But the stoma
25:58
nurse is the most...
25:59
underrated and the best friend
26:02
of anyone with a stoma because they've got these little tips
26:04
and tricks that no one else can teach you Yeah,
26:07
absolutely. You know, I always say to people make sure
26:09
you've got good contact with these people Um,
26:11
but I also say to people as well as the stoma nurses
26:14
Talk to other patients. Yes, the power
26:17
to the patient is something I'm a huge advocate
26:19
of because they actually have lived
26:21
experience of what works
26:24
what doesn't work I think a lot of people aren't
26:26
told at the beginning of their stoma journey The
26:29
association between having a physical
26:31
condition and your mental health That
26:34
right there is missing in terms
26:36
of when I left hospital I
26:38
had no support and was never told
26:41
by my surgeons by my nurses that
26:43
this would really impact my mental health And
26:46
it knocked me for six when I first had my stoma
26:48
fitted because I was alone Everyone around
26:50
me in the bowel ward was 50 years older than
26:53
me and I had no one to relate to and
26:55
that's why I turned To social media
26:57
because I was like there's got to be other people Experiencing
27:01
what I'm experiencing now. How can I contact
27:03
them and just talk and that's
27:05
been my biggest sort of Almost
27:08
like the yeah victory and port of recovery
27:11
has been talking to people and venting how I'm feeling
27:14
Yeah, it's a chronic condition and it's
27:16
been known that chronic condition is
27:18
A linked with mental health issues
27:20
as well. And you know, it's a burden
27:22
of dealing with that on a daily basis
27:26
If I told you today that
27:29
I could reverse your stoma, would you
27:31
want it reversed?
27:34
No for me People
27:36
that want to get rid of a bag quite often.
27:38
It's for the aesthetic. It's just physically
27:41
Mentally, they can't handle having
27:43
a bag on their body. Whereas for me now, it's
27:46
just become part of my life It's enabled
27:48
me to be healthy and it's given
27:50
me my life back So I'm not willing to
27:52
risk that the pros don't outweigh
27:55
the cons So for me,
27:57
this is all working for me right now. I'm not willing
27:59
to risk it
27:59
No, I agree with
28:02
that 100%. What do you do when you're
28:04
sort of out and about on a plane, traveling,
28:06
public spaces? Do
28:09
people give you any sort of weird
28:11
looks?
28:12
Not only you having
28:14
your stoma, but also the
28:16
fact that this handsome,
28:18
fit young guy is just walked into
28:21
the table toilets and comes back out
28:23
and thinking, what's this guy done? Yeah,
28:26
so I guess it's a difficult one because
28:28
when you live with an invisible condition, people
28:31
associate disability quite often with
28:34
a wheelchair, something that's visual and you can
28:36
see there and it's out in the open. And
28:39
for a long time, and a lot of people I speak to as well,
28:41
they just don't go into disabled access facilities
28:44
for that reason, because they're worried about
28:46
someone judging them or someone calling them out. The
28:49
worst time I had it was about
28:52
two months after I had stoma surgery and
28:54
I was quite fragile. I was very
28:56
weak, so I was quite feeble in itself. At
28:59
that time, not ashamed of it, but
29:01
I was like, I didn't want people openly knowing I had
29:04
a stoma at that point. I went
29:06
to use a disabled toilet
29:08
in a big supermarket.
29:11
As I went into the toilet, one of the staff members shouted
29:13
out, that's the disabled access toilet across
29:16
about eight or nine people.
29:18
I was like, yeah, I'm aware of that.
29:20
And they were like, yeah, the gents' toilets there. I
29:22
was like, well, I need this one. And they were like, well, it's a disabled
29:24
toilet. And at that point, I was kind of like,
29:27
I just went in there and closed the door and I actually
29:29
had like, I was raging. I was like really
29:31
upset, like almost in tears. I'm annoyed
29:33
just listening to that. Yeah. And I thought,
29:35
for me, if that made me that upset, and
29:38
for
29:38
the type of person that I am, I'm like a,
29:41
brush my shoulders off, right, let's just get on with it. That's fine.
29:43
But for other people that could have put them in a position
29:45
where they were suicidal,
29:48
if they hated and resented their stoma
29:50
already, that is just pushing them over
29:53
the edge. And no one should be judged or
29:55
looked upon or frowned upon for using something
29:58
that is essential for them.
33:59
is some sort of psychopathic trait. They
34:02
do say that
34:03
when you're in a high-stress job,
34:06
if you're a CEO, if you're a pilot,
34:08
if you're in the military, if you're a surgeon, you have
34:11
psychopathic traits which are
34:13
desirable. You can keep calm
34:16
in a stressful situation. So if there's major bleeding, you
34:18
don't panic. You're like, okay, there's some bleeding there. Let
34:20
me sort it out. Because you want to be calm then. You
34:22
don't want to panic. So those are some psychopathic
34:24
traits where a psychopath would also keep
34:27
calm under pressure. There's also some undesirable
34:29
psychopathic traits. And there are some surgeons
34:31
and people in everyday life who are psychopaths.
34:35
So when I cut into humans, and
34:37
if I do surgery, I see bleeding, even
34:39
in my very first surgery, I was
34:42
thinking, this is cool. I
34:44
didn't think anything of it. I know people who
34:46
have fainted just at the sight of blood, who
34:48
faint in theatres, just seeing a bit
34:50
of bowel. I had a med student recently who
34:53
fell face first into an open abdomen,
34:55
had a face full of intestines and organ juice. And
34:58
my boss just yanked him out. He's like,
35:00
get out. We're going to cause a wound infection. Didn't care about the
35:02
student. Get out. But my
35:05
first ever surgery, major-ish surgery,
35:07
was appendisectomy, removing someone's appendix.
35:10
And I just thought, wow, I get to play with this fancy
35:12
tool and do this kind of stuff. And
35:14
at no point was I like, I'm cutting
35:17
into someone and their life is in
35:19
my hands. So I don't know what to say. Is that
35:21
good or bad? I don't know. But I've never
35:24
felt queasy or weird when I
35:27
see shit, piss, vomit, blood,
35:29
juice. I'm just thinking, wow, this
35:32
is incredible. Fascinating. Thank you for answering
35:34
that.
35:39
I want to tell you about a little secret of mine. It's called
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36:43
I hope you enjoyed that conversation with Misha.
36:46
It certainly really brings to light how
36:48
many people are out there that suffer with
36:50
inflammatory bowel disease and chronic conditions. And
36:53
maybe we need to be a bit more open and
36:55
sensitive to what's going on in other people's
36:57
lives as well.
37:03
This is the bit that I'm really passionate about
37:06
because there is so much garbage
37:08
online. It's time to take out the trash
37:11
and debunk those myths. Okay, so
37:13
I've got this question a fair few times.
37:16
Can Crohn's disease be caused
37:18
by stress? If you've watched this episode,
37:20
you're going to know that Crohn's disease is an inflammatory
37:23
bowel condition, and it's a type of autoimmune
37:26
condition, which means there is some glitch
37:28
in your immune system, which means that
37:30
your own body, your own immune system
37:33
fails to recognise its own cells and starts
37:35
to attack it, which leads to inflammation,
37:38
pain, bleeding from the bottom end, weight
37:40
loss, and all of these nasty things which are
37:42
associated with Crohn's disease. Now,
37:45
while stress doesn't cause Crohn's
37:47
disease, stress can actually exacerbate
37:50
Crohn's disease and worsen some of
37:52
the symptoms. And this is because stress
37:54
is not just a psychological state, it's
37:56
also a physiological one as well.
38:00
When you are anxious, you get changes to
38:02
your heart rate, you get various hormones
38:04
which are released. You can also get a
38:06
change in your gut microbiome and
38:09
we know that a lot of the symptoms
38:11
can be worsened in inflammatory bowel
38:13
disease by an alteration in
38:15
your gut bacteria or gut microbiome. You
38:18
can go into dysbiosis. So, these
38:20
can be worsened. Those symptoms of Crohn's
38:22
or hostess of colitis, even irritable
38:25
bowel syndrome can be worsened by
38:27
stress. So, actually trying
38:29
to regulate your stress if you have inflammatory
38:32
bowel disease or bowel issues can actually
38:34
help with symptom control. I
38:38
am constantly sent videos about this sort
38:40
of stuff on TikTok. It is rife
38:42
online colonic hydrotherapy.
38:45
Is that real? Do we need to flush out
38:48
our colons from toxins and parasites?
38:51
Absolutely no. This
38:53
is a myth and a dangerous
38:54
one as well. Your body has several organs
38:56
which are self-cleaning and self-detoxifying.
39:00
Your kidneys, your liver and
39:03
your colon as well. To emphasize
39:05
my point as to why colonic
39:07
irrigation and colon hydrotherapy
39:10
is dangerous, I'm going to give you an anecdote of
39:12
a patient and I'll change a few details. I
39:14
had a patient a few years ago who presented
39:17
with a hole in their bowel and they
39:19
ended up needing emergency surgery and
39:21
a stoma formed. The reason they had
39:23
a hole in their bowel, it was an elderly patient,
39:25
their bowel was slightly more thin as well. They
39:28
had gone to a colonic irrigation
39:30
spa session where they had basically a
39:33
high pressure jet of water insulating
39:36
their rectum and this had caused a
39:38
traumatic perforation, a traumatic
39:41
hole in their bowel and all the
39:43
shit from the inside leaked outside. You don't need
39:45
to be medical to know that shit leaking
39:47
is not good. Now if you feel
39:49
you need colonic irrigation to relieve
39:52
your constipation, there are other things you can
39:54
do. Increasing your fiber content,
39:56
increasing your water content from the top end,
39:59
not from the bottom end. recommend, and even
40:01
simple things like laxatives. If these still
40:04
don't work and you have chronic constipation,
40:07
your first port of call should not be, hang
40:09
on, let me put a jet spray of water
40:11
up my ass, it should be to go to your doctor
40:14
to find the underlying cause as to why
40:16
you have constipation. Even if you
40:19
have colonic irrigation and they clean out
40:21
your intestines, that's not going to fix the root
40:23
cause. The underlying cause of your constipation
40:25
will still be there. And as mentioned
40:27
before, this is highly dangerous, not
40:30
only because it can cause
40:32
risk of injury to the bowel, but also
40:34
it can cause a shift
40:36
in your electrolyte to the bottom end because you're pouring
40:39
water into your intestines, and
40:41
this can change your electrolyte balance. And
40:44
that's also not good.
40:52
Okay guys, before we go, let's have one
40:54
list of questions. This week it's from
40:56
James in Nottinghamshire. James
40:58
says, I work in a manual labour job
41:01
outside all day in the UK
41:03
in all weather conditions. One of
41:05
my big concerns at the minute is the sun. I
41:08
know the obvious protection, drinking water, sunscreen,
41:11
using clothes to cover the skin, but as
41:13
shade is not an option and I'm often sweaty
41:15
and warm, what more can I do to
41:18
stay protected in the sun?
41:20
That is a really excellent question from James,
41:22
particularly as the UK has been
41:24
experiencing a heat wave over the last couple of weeks
41:27
and this summer is going to be baking hot
41:29
and wherever you are in the world and if it's hot,
41:31
you need to know how to keep yourself cool.
41:34
So definitely James, you should keep drinking
41:37
water because sweating
41:39
is how we thermoregulate, how we
41:41
regulate our internal body temperature. So
41:43
if we can't sweat, then
41:46
we can't reduce our body heat. So
41:48
if you're very dehydrated, your
41:50
sweating will be one of the first things to stop
41:52
and then you will just be like a pig
41:54
who can't sweat and you'll overheat because pigs
41:57
literally cannot sweat and they are prone
41:59
to heat stroke. So don't be like a pig, drink
42:01
water, stay hydrated so you can sweat
42:04
and stay cool. And this next one might
42:06
sound counterintuitive, but actually
42:08
you should consider eating some spicy
42:11
food. If you look at warmer countries
42:13
around the world, India, Pakistan, places
42:16
like that, they eat spicy food
42:18
in very hot conditions because
42:20
capsaicin, the active
42:23
ingredient in spicy food, which
42:25
gives us that chilly burning sensation,
42:28
actually tricks our body into thinking
42:30
that we're hot. So our body
42:32
tries to counteract and compensate for that
42:35
by cooling us down and vasodilating
42:37
the blood vessels near the surface of the skin. So
42:40
it helps to cool us off. So that's another
42:42
little trick that you can do. And in
42:44
addition to doing the things you're doing already, water,
42:47
sunscreen and shade, another thing
42:49
you can do is specifically try to find
42:51
shade that's green. So plant
42:53
shade, not only do plants provide
42:56
a natural barrier and protection against
42:58
the sun, but they also help to cool you
43:00
down as biological natural
43:03
air conditioners. So the leaves
43:05
from plants actually release some
43:07
of the humidity and moisture as
43:10
part of their evaporative cooling. So it actually
43:12
helps to cool you down when you're near
43:14
trees and plants and shrubs. And
43:17
with regards to clothing, you can actually buy
43:19
specific UV protective clothing,
43:21
which can also help as well. These may be expensive,
43:24
but you can combine this with just covering
43:26
those bare areas, basically your head
43:29
as well, which can heat up far more quickly
43:31
as it's got a larger surface
43:33
area compared to other parts of
43:35
your body. James, thank you very
43:37
much for that question. Very appropriate for the time of the
43:39
video.
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