Podchaser Logo
Home
Living with a Stoma - A Bag for Life

Living with a Stoma - A Bag for Life

Released Tuesday, 18th July 2023
Good episode? Give it some love!
Living with a Stoma - A Bag for Life

Living with a Stoma - A Bag for Life

Living with a Stoma - A Bag for Life

Living with a Stoma - A Bag for Life

Tuesday, 18th July 2023
Good episode? Give it some love!
Rate Episode

Episode Transcript

Transcripts are displayed as originally observed. Some content, including advertisements may have changed.

Use Ctrl + F to search

0:00

No one ever wants to hear a cancer diagnosis,

0:03

that a family member with cancer can't get to

0:05

treatment, or that a friend with cancer can't

0:07

pay their medical bills. At the American Cancer

0:10

Society, we're working to make sure no

0:12

one has to hear those things again, because

0:14

we want all people to have an equal opportunity

0:17

to prevent, detect, treat, and survive

0:19

cancer. Together, we can end cancer

0:22

as we know it, for everyone. Learn

0:24

more at Cancer.org. American

0:26

Cancer Society. Every cancer, every

0:29

life.

0:32

Welcome to The Referral. I'm Dr. Curran,

0:34

a surgeon in the UK. This is

0:36

the podcast to go to if you want

0:39

actionable, evidence- based information

0:41

to help improve your life. On

0:43

today's podcast episode, we're gonna be talking

0:46

about invisible conditions. Now, it's

0:48

very likely that today, if you've been out

0:50

and about, you've been walking past people who

0:52

suffer with this condition, inflammatory

0:55

bowel disease. This is an umbrella term for

0:57

bowel conditions like ulcerative colitis

1:00

and Crohn's disease. And today, we're

1:02

gonna be joined by Misha Moinurad,

1:04

also known as Mr. Colitis Crohn's Online.

1:07

And he has almost 5.5 million

1:10

followers across all social media platforms.

1:12

And we're gonna be talking about how to navigate

1:15

life with a stoma, how to live a

1:17

fuller life with a chronic invisible

1:19

condition.

1:20

I had to change the way I viewed

1:23

my body and how I viewed a stoma. And

1:25

like you said, it's enabled me and

1:27

not disabled me. And obviously, you'll

1:29

get your chance to ask me a question in CrowdScience.

1:33

If you've got a question you want me to answer, head

1:35

over to thereferralpod.com and

1:37

shoot me a message. And excitingly, I'm gonna

1:39

be answering even more of your questions on

1:41

CrowdScience Extra. Just head over to

1:43

the Referral Show page on Apple Podcasts and

1:46

hit Try Free to start your free

1:48

trial today. And also coming up, we've

1:50

got If It Ducks

1:50

Like A Quack. This is a segment where I

1:52

completely decimate these nonsense

1:55

myths that you see online. But first, we

1:57

have What The Health. Let's take a quick

1:59

look at

3:59

So if you've been listening to any news

4:02

over the past couple of weeks, you've more than

4:04

likely heard about the Titan

4:06

submersible which went down to see the Titanic

4:09

shipwreck and the tragedy

4:11

that followed after that where the submersible

4:14

imploded and these people lost

4:17

their lives. I've had a few

4:19

messages from people online asking me

4:22

about how they lost their life and

4:25

if they felt any pain while

4:27

the submersible collapsed or imploded.

4:30

Now, this is quite a sensitive topic but

4:33

from a purely biological standpoint,

4:35

there is some science which may help explain

4:38

why they probably didn't feel any pain.

4:41

So to process pain, our

4:44

brain requires around 100 milliseconds

4:46

to actually, you know, process

4:48

that sensory information

4:48

about pain. And

4:51

to process the visual inputs,

4:53

our eyes need about 13 milliseconds.

4:56

The implosion we are led to believe

4:59

took less than one millisecond.

5:01

So it's likely for these people

5:03

in the submersible, it was instant light

5:06

out without any knowledge of it without

5:08

any pain.

5:13

So as a busy surgeon trying to balance

5:15

a surgical career but also a social media

5:18

career, I've got lots on my plate. I've

5:20

really found that using Notion AI

5:22

and artificial intelligence tool helps

5:24

to improve my productivity. It's

5:26

essentially an AI powered virtual

5:28

assistant notes app that plugs into

5:31

my own productivity universe helps

5:33

to improve my workflow, helps me

5:35

generate ideas and basically

5:38

saves time in my day to day work. And

5:40

you write faster by letting the Notion AI

5:43

handle all of the brainstorming element, the

5:45

drafting, the grammar, and just turning

5:47

messy notes into something that

5:49

looks slick and polished. And because it's

5:51

AI, the more you input into it, the more

5:53

it learns your own personal style, it learns

5:56

more details,

5:56

and it takes it from there. You

5:58

can actually try Notion AI for fun.

5:59

free when you go to notion.com slash

6:02

referral. That's all lowercase letters notion.com

6:05

slash referral. And when you use our link, you're

6:07

supporting the podcast as well. Try

6:09

Notion AI for free right now at notion.com

6:12

slash referral.

6:14

Why were medieval priests

6:16

so worried that women were going to seduce men

6:18

with fish that they'd kept in their pants? Who

6:21

was the first gay activist?

6:23

And what on earth does the expression sneezing

6:26

in the cabbage mean? I'll tell you, it's

6:28

not a cookery technique. That's for sure. Join

6:30

me, Kate Lister, on Betwixt the Sheets,

6:32

the history of sex scandal in society,

6:35

a podcast where we will be bed hopping throughout

6:37

time and civilization to

6:39

bring you the quirkiest and kinkiest stories

6:42

from history. What more could you

6:44

possibly want? Listen to Betwixt

6:46

the Sheets today, wherever it is that you get your

6:48

podcasts. A podcast by

6:50

History Hit.

6:57

Today's guest, Mr. Colitis

6:59

Crohn's, Misha Moynrad, is

7:01

an inspiring person. This

7:03

man almost lost his life at

7:06

the hands of inflammatory bowel disease and

7:08

he was saved and he was given

7:10

a stoma which gave him a new

7:12

lease of life. He is an incredible

7:15

influencer and inspiration to people

7:17

out there living with invisible conditions, with

7:20

chronic conditions and certainly with

7:22

stomas in the way that he

7:24

basically does everything

7:26

and anything he wants to. And

7:28

today I want to speak to Misha about how to live

7:31

life to the fullest with a stoma.

7:34

Misha, thank you very much for joining me

7:36

here. I started TikTok in 2019

7:38

and then I think very early 2020, I started

7:41

following you and we

7:45

were both following each other.

7:47

What were you doing on TikTok

7:49

and what do you do online? So

7:52

like yourself, I started pushing short

7:55

form video content

7:57

in 2019 in lockdown because

8:00

couldn't do my job. So I thought, where

8:02

can I put my energy? And it was

8:04

social media, I really lent into that. And

8:07

the idea for me creating content, and it

8:09

still lives within the thoughts of what I do

8:11

is to help people. It's to help

8:13

people that have got a medical condition like

8:15

me and are living with an invisible condition.

8:18

But it's also to educate

8:20

people that haven't got it and don't

8:22

understand it. So every day

8:24

I create content around the raw reality

8:27

of what I'm going through with a stoma. Yeah,

8:29

that's brilliant. And you're improving

8:31

directly people's awareness, but also

8:34

health literacy of people with

8:36

stomas as well. Yeah, it's getting people to understand

8:38

the little things and the tips and tricks, and

8:41

also empowering them to show you know, you

8:43

have got this, but it's not a limitation.

8:46

It's something that you can do amazing

8:48

things with still, you just need to be

8:50

strong enough and almost mentally resilient

8:53

enough to take those steps in the right direction. A

8:55

lot of people have no idea what a stoma

8:58

is. It's literally an opening,

9:00

usually on the surface of the skin on their tummy, where

9:04

a piece of urine testing often is

9:06

brought out to the surface of your skin to divert

9:09

feces or urine or other waste

9:12

matter. You have that, but

9:14

just looking at you, the average person on the street would

9:17

not know. How did

9:18

you come to have a stoma? So

9:21

my journey kind of started in 2013. I

9:23

was at university studying high performance

9:26

coaching nutrition, like just a normal student

9:28

going out five or six times a week drinking

9:31

a lot. And I

9:33

just started to feel a bit unwell, just wasn't well

9:35

at all. I have three GPs

9:38

come and visit me at home. And they actually diagnosed

9:40

me with gastroenteritis, which

9:43

is essentially a stomach bug. Yeah, yeah.

9:45

In fiction, inflammation of the bowel. And

9:48

I kind of thought, okay, I'll listen to my doctors.

9:51

This is what it is. And left it following

9:54

week. And in this time, I was being

9:56

sick a lot. I was bringing up a lot of bio. I

9:59

was just really feeling. I'm well. My

10:01

dad come and took one look at me and was like,

10:04

we're going to the hospital right now. So obviously he could

10:06

see something was a little bit more

10:08

than what my body was giving on. So

10:11

we went to hospital after that week and

10:14

I got to the reception desk at Southampton

10:16

General. I remember looking straight

10:18

into the receptionist's size, sort of

10:20

explaining what was going on. And

10:23

I just passed out. I actually knocked one

10:25

of my teeth out on the floor. I

10:27

was put into an induced coma

10:30

for about three and a half weeks. And

10:32

at that point I was given about 20%. So it was

10:35

a real touch and go time for me in terms of my

10:37

health. So when you were in a coma, you still

10:40

hadn't had an operation? No.

10:42

So my health was in a really good place

10:45

before that. And basically what had happened

10:47

actually had a ruptured appendix. So

10:49

that was the first sort of battle I had

10:51

with NFT medical in my life.

10:53

And then it was only following

10:56

that after I woke up and recovered

10:58

after the night, I'd say probably eight to

11:00

nine months after that initial surgery

11:02

that I actually recovered. And

11:05

then I started getting symptoms of bowel disease. And

11:08

what the doctors said is because I was so inflamed

11:11

inside and I was getting

11:13

put down to theatre for eight or nine hours

11:15

a day over the course of that coma, they

11:18

were taking all of my stuff out,

11:20

washing it and then vac packing

11:22

it back in position. And then I would go

11:25

back. I mean, by the sounds of it, I don't

11:27

know your specific surgical details,

11:29

but it sounds like you had

11:31

a laparotomy. So a big cut in

11:34

the middle of your tummy, literally opening

11:36

you up like a suitcase. So through

11:38

the skin, through the muscle into your

11:41

abdominal cavity,

11:42

and your intestines were out on show. And

11:45

eventually once you were

11:47

diagnosed with Crohn's colitis,

11:50

you had your entire colon removed.

11:53

Exactly that. So I tried medication

11:55

for around four years, and

11:58

it just didn't actually give me any relief.

13:59

sex? How am I going to open up to my

14:02

loved one? How am I going to be in a relationship?

14:04

How am I going to function? Now

14:07

you've got a fiance now, you recently proposed. Congratulations.

14:10

Thank you very much. Come back from Maldives. But

14:13

when you had a stoma first,

14:16

were you single with a stoma and then got into a

14:18

relationship? Or were you already

14:20

going out with this person pre-stoma? No.

14:23

So I think one of the things going

14:25

back to what you said earlier about that, sort

14:27

of like an instant negative association

14:30

with having something different on your body. I

14:32

think the thing with a stoma is

14:34

it's taught very much end of line.

14:37

So doctors, medical professionals

14:39

often say, if

14:40

things don't go right, you'll need

14:43

a stoma, which in a patient's mind,

14:45

or anyone's mind, it's already categorised

14:48

as negative. Yeah, seems like a bad thing. So

14:50

then you've planted the seed there that

14:52

it's a bad thing. So immediately, whenever you talk

14:54

about that now, it's going to be a negative thing. And that's why

14:56

I try and show online that it's not the

14:59

end. It's not positive. Yeah, it's an opening. It's a new

15:01

start. It's a fresh beginning. I guess, like, you

15:03

know, all those things that you spoke about from, am

15:05

I going to be able to continue

15:08

with my work, relationships, all

15:10

of those things, like, they're definitely impacted.

15:12

You have to be careful. I have to be mindful

15:15

of things I do because I'm at a risk

15:17

of opening up other medical problems like

15:19

herniations and prolapses and all those things.

15:22

But in terms of like, sex and

15:24

people don't have to do normal things. It's

15:27

completely like anyone else. It's the same thing. It's

15:29

just a small bag on your stomach. I always

15:31

say to people that ask me about relationships and stuff

15:34

like that. If you find the right person,

15:36

they'll love you for you. They're not

15:38

interested about whether you've got a stoma

15:40

or whether you're missing an arm or whether you've got a medical

15:43

condition. It's part of you, right? I think in

15:45

a very, very strange way,

15:47

that it's almost an incredible discriminator

15:50

of someone who really loves you. Yeah, it's

15:53

an amazing filter. Yeah, exactly.

15:55

So you can just filter off anyone

15:57

who, you know, has a negative association.

15:59

and not interested, she knew what she was

16:02

getting into as such, because I've always been from the

16:04

minute I started social media, very

16:06

open, honest, and showed

16:08

my reality, right? Yeah, 100%. And that's

16:10

why we started following each

16:12

other, and we did lots of stuff about stomas. And

16:16

what I wanted to ask is, obviously, going back to

16:18

your history where you were suffering with

16:20

these weeks of tummy

16:22

pain, and you were diagnosed with a ruptured appendix,

16:25

and it took a while for you to be diagnosed.

16:28

And this is something,

16:29

not to this extent that you experience,

16:32

but this is something I see quite often. I

16:35

do clinics with bowel patients who've

16:37

got bowel problems, diarrhea, constipation,

16:39

abdominal pain, bloating. And

16:42

a lot of patients I see as a general

16:44

surgeon, they have been self-diagnosed

16:47

with IBS, irritable bowel syndrome,

16:50

or their GP or someone has told them

16:52

they've got irritable bowel syndrome, maybe just looking

16:54

up online or based on just symptoms. And

16:56

I see them, and I'm thinking,

16:59

you could easily have inflammatory bowel

17:01

disease, which encompasses Crohn's or ulcerative

17:03

colitis. And that's the thing. If

17:06

you have symptoms like you experienced, maybe

17:08

unexpected weight loss or changing

17:10

your bowel habit to diarrhea or constipation,

17:13

bleeding, get it checked out, and

17:15

don't just say it's IBS. I mean,

17:18

how many months or weeks before you went

17:20

to hospital did you have symptoms for? That's a really

17:22

good question. Because of stuff

17:25

like I remember very vividly

17:27

looking on the edge of

17:29

the buses and the underground of

17:32

the cancer awareness post,

17:34

if you're losing blood, come

17:36

forward, go and see a doctor, it

17:39

was almost too scary for me

17:41

to do that. So I probably left it longer than

17:43

I should. So you probably had symptoms for

17:45

months before. Yeah, and I left it because

17:47

I was just worried. I

17:50

think quite often as a patient and as a

17:52

person, you kind of see the medical

17:54

industry as against you, as opposed to

17:56

for you. So you're scared because

17:58

you know that there could be the news that comes to

18:01

you, you've got the big C. Devastating news, yeah. But

18:03

the fact of the matter is, the quicker you act

18:05

upon something like that, a lot of these conditions are very

18:07

treatable. So it's kind of like making sure

18:09

that you do go forward. And I had loads of testing.

18:12

I had more fingers than I've got on my

18:14

hands and my bum, which isn't fun,

18:17

but it's part of looking after

18:19

yourself. And the more that we talk

18:21

about this and open up the conversation and show

18:23

the realities, it de-stigmatize, but also

18:26

takes away the fear. And I think that's one of

18:28

the biggest things that someone can watch one of my videos

18:29

and say, actually having

18:32

a stoma isn't as scary as it looks. Going

18:34

for these tests isn't as scary as it looks.

18:37

They could come forward sooner and it could save

18:39

their life or give them more longevity

18:42

in their life. I mean, you were a fitness

18:44

professional before your surgery. You

18:46

still are a fitness professional now, as well as

18:48

a huge influencer. And you

18:50

deadlift, you lift heavy weights. What's

18:53

your take on weightlifting,

18:55

strenuous activity after

18:58

stoma surgery and a major abdominal

18:59

surgery? So when I was in hospital

19:02

again, and remember this clear as day, there was

19:04

a nurse that came in to see me and

19:07

she said, you will never have a physical job

19:09

again. Yeah, so that was literally the word

19:11

she said. There was also another nurse at

19:13

the same time that said, you're never

19:15

gonna have a six pack like Peter Andre. And

19:18

I was like, there's certain things

19:20

you don't say to a young bloke

19:22

who's just come off the back of a massive

19:24

surgery who was really into the health of fitness.

19:27

And they're led there about five and a half stone. That's a really weird thing

19:29

to say. Really weird thing to say. But instead

19:32

of me looking at that and seeing

19:34

it as something like, maybe she's right. I'm not

19:36

gonna do anything like this. It actually turned

19:38

something on in me. It's a challenge. We're thinking,

19:41

I'm gonna prove you wrong. And that's exactly what

19:43

I done. Before stepping into social

19:45

media full time and having my

19:47

businesses within social media now, I

19:50

was a rehab coach. So if you had a

19:53

triple heart bypass, a hip replacement, a

19:55

knee replacement, a stoma fitted, you

19:58

would come to the clinic that I was at and then I would rehab. have you

20:00

back to full health, even preoperative, postoperative.

20:02

So I know anatomy and

20:05

physiology and the body and how amazing

20:07

the body can be. And I've

20:09

always pushed those boundaries but safely. So

20:12

I know that I'm at a higher risk of a prolapse

20:14

or a herniation. I know that I can be more

20:16

fatigued than the average person sometimes. The

20:18

reality is although I've got a stoma

20:20

now, it's not the end of my journey. It's

20:23

just another part of my journey. It doesn't mean I'm

20:25

cured. And that's what I try and express

20:28

to people getting a stoma

20:30

isn't always clean sailing for everyone. It's not gonna

20:32

work for everyone because like you said, surgery

20:35

comes with complications and you've got to be

20:37

aware of that. But for me, I've

20:40

been lucky enough to sort of

20:42

get through it quite complication free. I mean,

20:44

that's the thing with Crohn's disease, as

20:46

of right now in 2023, there is no cure. We

20:50

can help to reduce symptoms and

20:52

sometimes it can go

20:55

into quiescence where it just quietens down

20:57

to a point where you may have minimal symptoms,

20:59

but it's a chronic condition which

21:02

we can manage with removing pieces

21:04

of bowel, et cetera. But actually there's

21:06

no curable thing for it. And you

21:08

mentioned the prolapse and the herniation. And

21:11

that's what I wanted to talk about with you specifically.

21:14

From my own experience, the

21:16

literature and speaking to all my colleagues,

21:18

colorectal surgeons,

21:20

I don't wanna say 100%, but I would say

21:23

the majority, if not close to 100% of people with stomas

21:27

will have a parastomal hernia,

21:29

which means a hernia, something from the

21:31

inside of their abdomen poking out next

21:34

to their stoma. Have you experienced

21:36

that and with people that you coach and rehab?

21:38

So I'm very lucky in the fact that I

21:40

haven't got one, even though I lift and stuff, but obviously

21:43

I designed a brace myself, which

21:45

I wear religiously. I've got one on right now, so I wear

21:47

it all day every day, particularly when I'm training and stuff.

21:50

But like you said, the percentages

21:53

are on the bad side of that happening. And

21:56

you can't

21:57

control everything within your health.

21:59

That's the fact of the matter is you can do as much

22:02

as you can but you can get a hernia or

22:04

a prolapse like that from sneezing, coughing.

22:07

Most patients I speak to, that's how they got their hernia

22:10

is from sneezing or coughing or getting out of bed incorrectly.

22:12

I always tell people to

22:14

roll to the side. Roll and brace

22:17

yourself. Yeah, brace yourself. But effectively,

22:20

it's

22:21

normally a case

22:22

of not if it will happen, it's

22:24

when. Yeah, 100%. Yeah,

22:27

like you said, hernia

22:30

belts, you've got an incredible one that you've designed.

22:33

Bracing yourself and probably

22:35

initially after surgery being mindful of

22:37

heavy lifting but then afterwards, probably

22:40

essentially do what you want. Live your life. And

22:42

I think what you said there about living your life

22:44

is something that I feel the medical industry needs to get

22:46

better at explaining to people because what

22:49

they can do is they can tell patients

22:51

not to eat certain things,

22:52

not to do certain things. People

22:55

like me will always push those

22:57

boundaries and show them

22:59

and prove them wrong that you can still do these amazing

23:01

things. Like I've done skydives, I go swimming all the time,

23:03

I do the gym six times a week, I very

23:05

much live my life but some people

23:07

sadly take that word as gospel

23:10

and then

23:11

they are imprisoned even though they've

23:13

had their surgery and they should

23:16

be living their life, they are imprisoned

23:18

with what they've been told. I think exactly.

23:20

The thing is, there's bespoke management for every

23:22

patient. And you touched there on an important

23:26

thing there, diet as well with stonemas.

23:28

How is your diet, is it restricted in any way?

23:31

No. Again, I kind of

23:33

went against the grain because when I left hospital,

23:35

they gave me a pamphlet and it was like

23:37

you basically are going to be eating beige for

23:39

the rest of your life. And I was like from

23:41

a health standpoint,

23:44

all the minerals, vitamins and everything that you

23:46

get from certain foods are not within

23:48

that palate. I was like, this isn't sustainable,

23:51

it affects my bone density, my

23:53

development of muscle and everything. I was like, this can't

23:55

be right. So the way that I done it, I

23:58

pulled my diet right back.

23:59

I started off with tinned pears, rice

24:02

and chicken, plain. That's all I had. And

24:05

I ate that for about

24:06

two or three months. And then what I'd done

24:08

is I introduced food very slowly

24:10

back into my diet. And I just was

24:13

very cautious about how my body responded.

24:15

So I could eat something, it would be

24:18

positive, it would be fine, I'd try a little bit

24:20

more. And over the course

24:22

of the years and years of doing that, I

24:24

found that the things I have to be mindful of is

24:27

chewing certain foods, making

24:31

sure I use the chew 20

24:33

times kind of rule on certain foods. I've

24:35

also learned that very dense fibrous

24:38

foods are just not good for me, I need

24:40

to stay away from them because they cause me like discomfort

24:43

and blocking because the end of the stoma is very

24:45

small. It's like the size of the end of my small

24:47

finger. And it narrows over time as well. So

24:50

all the food that you put in your mouth has got to go

24:52

through that, it's got to come out of that hole. So

24:55

quite often I like empty

24:57

my bag or I feel in my bag and I'm like, I

24:59

can literally feel like a bit of sweet corn. Yeah,

25:02

so it's important that I choose stuff, otherwise

25:04

it quite literally comes out and goes in.

25:06

Yeah, so you're not getting the nutrients from that. Exactly

25:08

that. I think

25:10

the important point there is that again,

25:12

it's bespoke for the person. So

25:15

if something works for you, it may not work for someone

25:18

else. Like you've been brave in your choices, but

25:20

you've been smart in the way you've done it. You've

25:23

added in things slowly and that's what I would advise

25:25

for anyone. Even people with IBS

25:28

sometimes ask me, I've been told I can't eat

25:30

fiber and you can. And in fact, you should

25:32

eat fiber because your gut bacteria need it, but

25:35

it's slowly

25:37

and gently adding in things and seeing

25:39

what works, what

25:40

doesn't work. I think as well,

25:43

the best friend for

25:45

a person who's got a stoma is the stomanous.

25:48

It's not your surgeon who they can do operations,

25:50

they can refashion your stoma, recite

25:53

it, put it in a different position fix your hernias,

25:55

whatever. Great, they've done their bit. But the stoma

25:58

nurse is the most...

25:59

underrated and the best friend

26:02

of anyone with a stoma because they've got these little tips

26:04

and tricks that no one else can teach you Yeah,

26:07

absolutely. You know, I always say to people make sure

26:09

you've got good contact with these people Um,

26:11

but I also say to people as well as the stoma nurses

26:14

Talk to other patients. Yes, the power

26:17

to the patient is something I'm a huge advocate

26:19

of because they actually have lived

26:21

experience of what works

26:24

what doesn't work I think a lot of people aren't

26:26

told at the beginning of their stoma journey The

26:29

association between having a physical

26:31

condition and your mental health That

26:34

right there is missing in terms

26:36

of when I left hospital I

26:38

had no support and was never told

26:41

by my surgeons by my nurses that

26:43

this would really impact my mental health And

26:46

it knocked me for six when I first had my stoma

26:48

fitted because I was alone Everyone around

26:50

me in the bowel ward was 50 years older than

26:53

me and I had no one to relate to and

26:55

that's why I turned To social media

26:57

because I was like there's got to be other people Experiencing

27:01

what I'm experiencing now. How can I contact

27:03

them and just talk and that's

27:05

been my biggest sort of Almost

27:08

like the yeah victory and port of recovery

27:11

has been talking to people and venting how I'm feeling

27:14

Yeah, it's a chronic condition and it's

27:16

been known that chronic condition is

27:18

A linked with mental health issues

27:20

as well. And you know, it's a burden

27:22

of dealing with that on a daily basis

27:26

If I told you today that

27:29

I could reverse your stoma, would you

27:31

want it reversed?

27:34

No for me People

27:36

that want to get rid of a bag quite often.

27:38

It's for the aesthetic. It's just physically

27:41

Mentally, they can't handle having

27:43

a bag on their body. Whereas for me now, it's

27:46

just become part of my life It's enabled

27:48

me to be healthy and it's given

27:50

me my life back So I'm not willing to

27:52

risk that the pros don't outweigh

27:55

the cons So for me,

27:57

this is all working for me right now. I'm not willing

27:59

to risk it

27:59

No, I agree with

28:02

that 100%. What do you do when you're

28:04

sort of out and about on a plane, traveling,

28:06

public spaces? Do

28:09

people give you any sort of weird

28:11

looks?

28:12

Not only you having

28:14

your stoma, but also the

28:16

fact that this handsome,

28:18

fit young guy is just walked into

28:21

the table toilets and comes back out

28:23

and thinking, what's this guy done? Yeah,

28:26

so I guess it's a difficult one because

28:28

when you live with an invisible condition, people

28:31

associate disability quite often with

28:34

a wheelchair, something that's visual and you can

28:36

see there and it's out in the open. And

28:39

for a long time, and a lot of people I speak to as well,

28:41

they just don't go into disabled access facilities

28:44

for that reason, because they're worried about

28:46

someone judging them or someone calling them out. The

28:49

worst time I had it was about

28:52

two months after I had stoma surgery and

28:54

I was quite fragile. I was very

28:56

weak, so I was quite feeble in itself. At

28:59

that time, not ashamed of it, but

29:01

I was like, I didn't want people openly knowing I had

29:04

a stoma at that point. I went

29:06

to use a disabled toilet

29:08

in a big supermarket.

29:11

As I went into the toilet, one of the staff members shouted

29:13

out, that's the disabled access toilet across

29:16

about eight or nine people.

29:18

I was like, yeah, I'm aware of that.

29:20

And they were like, yeah, the gents' toilets there. I

29:22

was like, well, I need this one. And they were like, well, it's a disabled

29:24

toilet. And at that point, I was kind of like,

29:27

I just went in there and closed the door and I actually

29:29

had like, I was raging. I was like really

29:31

upset, like almost in tears. I'm annoyed

29:33

just listening to that. Yeah. And I thought,

29:35

for me, if that made me that upset, and

29:38

for

29:38

the type of person that I am, I'm like a,

29:41

brush my shoulders off, right, let's just get on with it. That's fine.

29:43

But for other people that could have put them in a position

29:45

where they were suicidal,

29:48

if they hated and resented their stoma

29:50

already, that is just pushing them over

29:53

the edge. And no one should be judged or

29:55

looked upon or frowned upon for using something

29:58

that is essential for them.

33:59

is some sort of psychopathic trait. They

34:02

do say that

34:03

when you're in a high-stress job,

34:06

if you're a CEO, if you're a pilot,

34:08

if you're in the military, if you're a surgeon, you have

34:11

psychopathic traits which are

34:13

desirable. You can keep calm

34:16

in a stressful situation. So if there's major bleeding, you

34:18

don't panic. You're like, okay, there's some bleeding there. Let

34:20

me sort it out. Because you want to be calm then. You

34:22

don't want to panic. So those are some psychopathic

34:24

traits where a psychopath would also keep

34:27

calm under pressure. There's also some undesirable

34:29

psychopathic traits. And there are some surgeons

34:31

and people in everyday life who are psychopaths.

34:35

So when I cut into humans, and

34:37

if I do surgery, I see bleeding, even

34:39

in my very first surgery, I was

34:42

thinking, this is cool. I

34:44

didn't think anything of it. I know people who

34:46

have fainted just at the sight of blood, who

34:48

faint in theatres, just seeing a bit

34:50

of bowel. I had a med student recently who

34:53

fell face first into an open abdomen,

34:55

had a face full of intestines and organ juice. And

34:58

my boss just yanked him out. He's like,

35:00

get out. We're going to cause a wound infection. Didn't care about the

35:02

student. Get out. But my

35:05

first ever surgery, major-ish surgery,

35:07

was appendisectomy, removing someone's appendix.

35:10

And I just thought, wow, I get to play with this fancy

35:12

tool and do this kind of stuff. And

35:14

at no point was I like, I'm cutting

35:17

into someone and their life is in

35:19

my hands. So I don't know what to say. Is that

35:21

good or bad? I don't know. But I've never

35:24

felt queasy or weird when I

35:27

see shit, piss, vomit, blood,

35:29

juice. I'm just thinking, wow, this

35:32

is incredible. Fascinating. Thank you for answering

35:34

that.

35:39

I want to tell you about a little secret of mine. It's called

35:41

The Secret Mum Club. And it's a brand new podcast

35:44

that's all about the little secrets that we keep

35:46

to ourselves as parents to get us through the day.

35:48

Whether it's questionable parenting techniques, hilarious

35:51

fails, or cringe-worthy moments of madness from

35:53

your little ones, the easiest thing to do

35:55

for all concerned is to brush it under the lightly

35:58

soiled carpet and pretend everything

35:59

is okay. So join me, Safina

36:02

and my secret sidekick and mum friend, Emma

36:04

Jones. Hiya. Just search and follow The Secret Mum

36:06

Club wherever you get your podcasts.

36:09

This episode is brought to you by State

36:12

Farm. What if your life story was a podcast?

36:14

Would it be a comedy or a thriller? Whatever

36:17

genre, State Farm is there for your what

36:19

ifs to keep your life story from becoming

36:21

a mystery. Because when you've got questions,

36:24

they've got answers 24 seven, you

36:26

can file a claim on the State Farm mobile app

36:28

or simply give your agent a call. It's how insurance

36:31

plays a supporting role in your story.

36:33

Like a good neighbour, State Farm is there. Visit

36:35

Statefarm.com for a quote today.

36:43

I hope you enjoyed that conversation with Misha.

36:46

It certainly really brings to light how

36:48

many people are out there that suffer with

36:50

inflammatory bowel disease and chronic conditions. And

36:53

maybe we need to be a bit more open and

36:55

sensitive to what's going on in other people's

36:57

lives as well.

37:03

This is the bit that I'm really passionate about

37:06

because there is so much garbage

37:08

online. It's time to take out the trash

37:11

and debunk those myths. Okay, so

37:13

I've got this question a fair few times.

37:16

Can Crohn's disease be caused

37:18

by stress? If you've watched this episode,

37:20

you're going to know that Crohn's disease is an inflammatory

37:23

bowel condition, and it's a type of autoimmune

37:26

condition, which means there is some glitch

37:28

in your immune system, which means that

37:30

your own body, your own immune system

37:33

fails to recognise its own cells and starts

37:35

to attack it, which leads to inflammation,

37:38

pain, bleeding from the bottom end, weight

37:40

loss, and all of these nasty things which are

37:42

associated with Crohn's disease. Now,

37:45

while stress doesn't cause Crohn's

37:47

disease, stress can actually exacerbate

37:50

Crohn's disease and worsen some of

37:52

the symptoms. And this is because stress

37:54

is not just a psychological state, it's

37:56

also a physiological one as well.

38:00

When you are anxious, you get changes to

38:02

your heart rate, you get various hormones

38:04

which are released. You can also get a

38:06

change in your gut microbiome and

38:09

we know that a lot of the symptoms

38:11

can be worsened in inflammatory bowel

38:13

disease by an alteration in

38:15

your gut bacteria or gut microbiome. You

38:18

can go into dysbiosis. So, these

38:20

can be worsened. Those symptoms of Crohn's

38:22

or hostess of colitis, even irritable

38:25

bowel syndrome can be worsened by

38:27

stress. So, actually trying

38:29

to regulate your stress if you have inflammatory

38:32

bowel disease or bowel issues can actually

38:34

help with symptom control. I

38:38

am constantly sent videos about this sort

38:40

of stuff on TikTok. It is rife

38:42

online colonic hydrotherapy.

38:45

Is that real? Do we need to flush out

38:48

our colons from toxins and parasites?

38:51

Absolutely no. This

38:53

is a myth and a dangerous

38:54

one as well. Your body has several organs

38:56

which are self-cleaning and self-detoxifying.

39:00

Your kidneys, your liver and

39:03

your colon as well. To emphasize

39:05

my point as to why colonic

39:07

irrigation and colon hydrotherapy

39:10

is dangerous, I'm going to give you an anecdote of

39:12

a patient and I'll change a few details. I

39:14

had a patient a few years ago who presented

39:17

with a hole in their bowel and they

39:19

ended up needing emergency surgery and

39:21

a stoma formed. The reason they had

39:23

a hole in their bowel, it was an elderly patient,

39:25

their bowel was slightly more thin as well. They

39:28

had gone to a colonic irrigation

39:30

spa session where they had basically a

39:33

high pressure jet of water insulating

39:36

their rectum and this had caused a

39:38

traumatic perforation, a traumatic

39:41

hole in their bowel and all the

39:43

shit from the inside leaked outside. You don't need

39:45

to be medical to know that shit leaking

39:47

is not good. Now if you feel

39:49

you need colonic irrigation to relieve

39:52

your constipation, there are other things you can

39:54

do. Increasing your fiber content,

39:56

increasing your water content from the top end,

39:59

not from the bottom end. recommend, and even

40:01

simple things like laxatives. If these still

40:04

don't work and you have chronic constipation,

40:07

your first port of call should not be, hang

40:09

on, let me put a jet spray of water

40:11

up my ass, it should be to go to your doctor

40:14

to find the underlying cause as to why

40:16

you have constipation. Even if you

40:19

have colonic irrigation and they clean out

40:21

your intestines, that's not going to fix the root

40:23

cause. The underlying cause of your constipation

40:25

will still be there. And as mentioned

40:27

before, this is highly dangerous, not

40:30

only because it can cause

40:32

risk of injury to the bowel, but also

40:34

it can cause a shift

40:36

in your electrolyte to the bottom end because you're pouring

40:39

water into your intestines, and

40:41

this can change your electrolyte balance. And

40:44

that's also not good.

40:52

Okay guys, before we go, let's have one

40:54

list of questions. This week it's from

40:56

James in Nottinghamshire. James

40:58

says, I work in a manual labour job

41:01

outside all day in the UK

41:03

in all weather conditions. One of

41:05

my big concerns at the minute is the sun. I

41:08

know the obvious protection, drinking water, sunscreen,

41:11

using clothes to cover the skin, but as

41:13

shade is not an option and I'm often sweaty

41:15

and warm, what more can I do to

41:18

stay protected in the sun?

41:20

That is a really excellent question from James,

41:22

particularly as the UK has been

41:24

experiencing a heat wave over the last couple of weeks

41:27

and this summer is going to be baking hot

41:29

and wherever you are in the world and if it's hot,

41:31

you need to know how to keep yourself cool.

41:34

So definitely James, you should keep drinking

41:37

water because sweating

41:39

is how we thermoregulate, how we

41:41

regulate our internal body temperature. So

41:43

if we can't sweat, then

41:46

we can't reduce our body heat. So

41:48

if you're very dehydrated, your

41:50

sweating will be one of the first things to stop

41:52

and then you will just be like a pig

41:54

who can't sweat and you'll overheat because pigs

41:57

literally cannot sweat and they are prone

41:59

to heat stroke. So don't be like a pig, drink

42:01

water, stay hydrated so you can sweat

42:04

and stay cool. And this next one might

42:06

sound counterintuitive, but actually

42:08

you should consider eating some spicy

42:11

food. If you look at warmer countries

42:13

around the world, India, Pakistan, places

42:16

like that, they eat spicy food

42:18

in very hot conditions because

42:20

capsaicin, the active

42:23

ingredient in spicy food, which

42:25

gives us that chilly burning sensation,

42:28

actually tricks our body into thinking

42:30

that we're hot. So our body

42:32

tries to counteract and compensate for that

42:35

by cooling us down and vasodilating

42:37

the blood vessels near the surface of the skin. So

42:40

it helps to cool us off. So that's another

42:42

little trick that you can do. And in

42:44

addition to doing the things you're doing already, water,

42:47

sunscreen and shade, another thing

42:49

you can do is specifically try to find

42:51

shade that's green. So plant

42:53

shade, not only do plants provide

42:56

a natural barrier and protection against

42:58

the sun, but they also help to cool you

43:00

down as biological natural

43:03

air conditioners. So the leaves

43:05

from plants actually release some

43:07

of the humidity and moisture as

43:10

part of their evaporative cooling. So it actually

43:12

helps to cool you down when you're near

43:14

trees and plants and shrubs. And

43:17

with regards to clothing, you can actually buy

43:19

specific UV protective clothing,

43:21

which can also help as well. These may be expensive,

43:24

but you can combine this with just covering

43:26

those bare areas, basically your head

43:29

as well, which can heat up far more quickly

43:31

as it's got a larger surface

43:33

area compared to other parts of

43:35

your body. James, thank you very

43:37

much for that question. Very appropriate for the time of the

43:39

video.

Rate

Join Podchaser to...

  • Rate podcasts and episodes
  • Follow podcasts and creators
  • Create podcast and episode lists
  • & much more

Episode Tags

Do you host or manage this podcast?
Claim and edit this page to your liking.
,

Unlock more with Podchaser Pro

  • Audience Insights
  • Contact Information
  • Demographics
  • Charts
  • Sponsor History
  • and More!
Pro Features