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Chronic Battles and Small Victories: Endometriosis, Gratitude, and Motherhood's Daily Chaos

Chronic Battles and Small Victories: Endometriosis, Gratitude, and Motherhood's Daily Chaos

Released Thursday, 20th June 2024
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Chronic Battles and Small Victories: Endometriosis, Gratitude, and Motherhood's Daily Chaos

Chronic Battles and Small Victories: Endometriosis, Gratitude, and Motherhood's Daily Chaos

Chronic Battles and Small Victories: Endometriosis, Gratitude, and Motherhood's Daily Chaos

Chronic Battles and Small Victories: Endometriosis, Gratitude, and Motherhood's Daily Chaos

Thursday, 20th June 2024
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Episode Transcript

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0:01

Good morning everybody . Welcome to

0:03

another episode of Still Rose's

0:05

podcast . This podcast was created for women

0:07

, by women . What

0:10

you don't know is that this is take two , take

0:13

one this morning . For

0:15

some reason , every once in a while my

0:17

laptop will

0:20

change the settings or something to

0:22

that effect . So yesterday it was like my camera setting

0:24

was off and then I

0:26

couldn't . The camera was locked , and it

0:29

doesn't matter because I don't do footage , but either

0:31

way it was annoying because I do like to see , like

0:33

myself on camera when I talk . It helps

0:35

a little bit , I think , for me . This

0:38

morning my mic was off , so I started

0:40

recording our episode today and I had

0:43

to stop because , thankfully , I actually noticed

0:45

it , because otherwise I wouldn't really upset . So

0:47

anyway , this is actually take

0:49

two of this morning's episode . So

0:52

what I wanted to share too , because

0:56

it kind of brings me full circle with the topics

0:58

that I wanted to bring up today . For

1:01

those of you who've been listening for a while , you do know that

1:03

, um , I have endometriosis

1:06

and um , we've gone through

1:08

like the disease and what

1:10

that means and what , what the full

1:13

story is . Um , for those of you who haven't

1:15

been listening , we do have an endometriosis episode

1:17

. Um , it aired in March . I'm going to link it in

1:19

this episode so you can hear the full

1:21

story . Um

1:27

, at the time I met with a patient advocate , laura . She's amazing . She's really

1:29

trying to make waves and

1:31

set up a better future for

1:33

people with endometriosis , because

1:35

the disease itself goes undiagnosed for so

1:37

long that it causes a lot of issues

1:40

for women , including

1:42

infertility and just I mean

1:44

, pain , the mental health state

1:46

like it runs the gamut . There's loads of

1:49

information out there . Oh , excuse me

1:51

, let me correct that . There is not loads of information

1:53

out there . There

1:55

are only some websites that actually have actual

1:58

, legitimate information , which is why

2:00

this disease goes undiagnosed for so long

2:02

. In

2:04

any case , I'm going to link that episode so you can listen

2:06

to that , because there's a lot of good information in there . But

2:08

what I'm focusing in on is that yesterday

2:11

I had a bit of a and a

2:13

bit by a bit . I mean I had a flare

2:15

up and I haven't had one in a really long

2:17

time . So when you have endometriosis

2:20

, your cycles are incredibly painful and

2:22

, amongst a variety of

2:25

other symptoms , but

2:27

pain is one of the most prevalent

2:29

. I

2:31

have a pretty high tolerance and

2:33

I usually , as most women

2:35

do , cope and power through when

2:38

there's episodes like that . However , I

2:41

was unprepared yesterday , so I normally

2:43

, when I have my cycle

2:45

, have to take Lidol

2:48

or pain relievers

2:51

every two hours when I

2:53

have it , because if I don't , the

2:57

pain becomes excruciating . And

2:59

so , for the most part , I'm just trying to numb for

3:01

the entire time that I have my cycle

3:04

. Most

3:08

part I'm just trying to numb for the entire time that I have my cycle . For all intents and purposes , as

3:10

I get older , I'm trying to cut back the amount of medicine that I take

3:12

because it is affecting my stomach which

3:15

food for thought for all of you , you know , younger

3:17

than 40 , it does happen eventually , like

3:19

your body starts to just not , it starts to reject

3:21

stuff . So I'm trying to be mindful of that

3:24

and I thought to myself well , this medicine is this last

3:26

like four hours . We took the kids

3:28

out and I didn't . I

3:30

usually carry it with me , so that way , once I start

3:32

to sense that it's the

3:34

medicine is wearing off , I can take it immediately

3:36

and I don't have any any gaps . So

3:39

what ended up happening

3:41

is I didn't take it with me , I thought I could

3:43

just deal with it and I

3:46

ended up having one of the worst episodes

3:49

I have had in years . Like

3:51

years I

4:06

take medicine , like I'm trying really hard not to further damage my stomach and I

4:08

got I was making dinner and I was trying to

4:10

get everything out and you know I I know it sounds a little dumb like

4:12

just , jenny , grab a handful of something , eat it

4:15

and take your medicine . Like you have to get that medicine in . I

4:17

was in mom mode , slash

4:20

wife mode , and was

4:22

like I need to get food cooked because everyone

4:24

was griping and starving and crying and

4:27

like you know , and I myself

4:29

was getting grouchy and so it just it was

4:31

just one of those like snowball moments . I

4:33

ended up in the middle of my kitchen , like

4:35

tears coming down my face , as I'm like grilling

4:37

chicken . Like just because

4:40

I was in such severe

4:42

pain to the

4:44

point where my kids like stopped me . They're like , mommy , just stop

4:46

. Like just sit down , it's okay . Like it's okay , we

4:48

can eat cereal . Like that's literally what they told me We'll

4:50

eat cereal , you don't have to cook

4:52

. So

4:55

I took medicine . As

4:57

soon as I take the medicine , within like 30

4:59

or 40 minutes , everything starts to dissipate and

5:01

I was okay the rest of the evening

5:03

. But that

5:07

intensity in that moment made

5:10

me think of all of you because

5:13

, for what

5:17

it's worth , in that

5:19

moment I

5:22

felt connected to every single other endometriosis

5:24

patient . It's

5:29

a very painful

5:31

personal

5:34

journey that a lot of women go on because

5:36

they're undiagnosed

5:38

and because it happens

5:40

, because the pain , because it's associated

5:42

with your period , there

5:45

is a certain level of shame that comes with it

5:47

for some , but there's also

5:49

like a whole layer of secrecy out

5:51

there for women who experienced any

5:55

adverse symptoms during

5:58

their period . Yeah , because

6:01

period is supposedly like a

6:03

dirty word . It's your period . We bring

6:05

life into this world , ladies , we're

6:08

the only beings on this planet that

6:11

serve as a portal from

6:14

someplace else that

6:16

brings life here . Period

6:21

is not a dirty word , it's

6:23

just not . And

6:25

for some reason we're like conditioned I mean , I know

6:27

why , because of the patriarchy , but like don't

6:29

get me started so we're

6:32

conditioned to believe

6:34

it's a secret and we need to keep it a secret

6:36

. We can't let anyone know about it , like we can't let

6:38

anyone know that we have our periods . It's

6:41

not a dirty word , ladies , we all have it , and

6:43

we have it because we're bringing life into this world

6:46

. So it

6:48

had gotten me thinking , you know , while I was going through

6:50

that . Of course , everybody like I started thinking

6:52

of everyone , but then I started thinking about my daughters . Now , endometriosis

6:55

If you have like heavy

6:57

bleeding , irregular periods , painful

7:00

periods , excruciating cramps

7:02

, um pain in your

7:04

backside which , by the way , if you've ever

7:06

experienced excruciating pain in your backside

7:08

, that doesn't mean you're dying it could

7:11

be a symptom of endometriosis

7:13

. There's a lot of stuff that

7:16

happens that women just don't

7:18

talk about , myself included . I remember getting

7:20

excruciating pain in

7:22

my butt when I was about 11

7:24

. I had no idea what it was and

7:26

in my head I was like I'm not saying anything about this because

7:28

I'm not having anyone go in there . So

7:31

there's a lot of that in there . So , anyway , it

7:34

had me to start to think about my

7:36

daughters , because endometriosis is a hereditary

7:38

disease and my

7:41

mind immediately goes to I don't want them to go through

7:43

this pain . I don't want them to have these issues

7:45

. Endometriosis causes infertility . So

7:48

I started

7:51

getting worked up about it . But then I remembered

7:53

something quite crucial . I

7:56

happen to know about this disease and

7:58

, instead of telling them

8:01

to just deal with it and take aspirin

8:03

, I actually know what will help them

8:05

. I know what will save their uterus

8:07

. I know what will save them years of questioning

8:10

, like what's going on with my body , and

8:12

I am the type of person

8:15

that will go right in with them to the doctor and

8:17

let them know , like this is what's going on . You

8:19

need to treat them appropriately . That's

8:23

the benefit here is that I have this experience

8:25

, that I can now help my kids and help anybody

8:27

else who's experiencing

8:30

this symptom or who you

8:32

know has a child that's experiencing it , and

8:34

maybe you don't realize that you have it too , which

8:37

, on that note , by the way new feature

8:39

for the podcast you should be able

8:41

to direct message me through

8:43

the actual wherever you're listening , there should

8:45

be a link that says contact and I think

8:48

that , like I tested it , like I

8:50

got it , but

8:53

if you message me there , like I'll be able to get in touch with you . So if you have

8:55

questions about this , please like message me . But

9:08

anyway , it got me thinking about them and being prepared for them and how being a mom has made me look

9:10

at things differently and through a lens of I want to make sure my children are prepared and I want

9:12

to make sure that they're they have everything not

9:15

material things , but mentally prepared

9:17

for life before they

9:19

leave the nest and you know when they

9:21

decide to leave the nest , because I'm sure as heck not going to

9:23

push them out anytime early . So

9:26

it got me . I

9:28

started thinking through what I want

9:30

to share with all of you and then , of

9:33

course , you've all been hearing me talk about how nervous

9:35

I am having everybody home

9:37

for summer break , because we

9:40

know it's day two for

9:42

me , know

9:47

it's day two for me . So I started looking through Pinterest , which is like my fave spot to

9:49

go to because unproblematic , not a lot of ridiculous things on there

9:51

. I can just kind of scroll through some nice

9:53

topics and food recipes and call

9:56

it a night . Just

9:58

in case anybody doesn't know this about me , I

10:00

am rather unproblematic . I like

10:02

to just be easygoing , because you

10:04

know why . Why be stressed out all the time ? Well

10:07

, I came across this quote and

10:10

it it's some

10:12

. It's like food for thought because , especially

10:15

since now that everybody's home , the house is going to be

10:17

messier , instead of sending

10:19

them to school and having them buy

10:21

lunch , I actually am going to have to

10:23

have lunch ready for everybody every single

10:25

day Breakfast , lunch and dinner

10:27

three meals . I'm going to have to get on

10:29

that bandwagon at this

10:31

point . So

10:34

this quote reads what a privilege

10:36

it is to clean a house made dirty by

10:38

healthy children playing , to

10:40

wash dishes , because we were able to eat

10:42

three meals today and to do

10:44

piles of laundry , because we all have clean

10:47

clothes to wear every day . Now

10:49

let's let that sink in

10:51

for a second and really

10:53

think about that , because

10:56

we actually

10:58

circle back to that kind

11:00

of thinking , that way of thinking , quite a bit

11:02

. Here in this house we

11:10

always my husband and I always are very mindful to remind each other

11:12

to be grateful because we came from such

11:15

small , such a small

11:18

setting . We came from an apartment

11:20

that was so small for us . We were busting

11:22

at the seams , the building wasn't

11:24

in good shape . I mean , appearance

11:27

wise was glossy , but the building itself

11:29

was infested and it was just

11:31

gross , like it just wasn't a good living

11:33

environment for my family for

11:35

any family really , in my opinion . We

11:40

were fortunate enough to be able to buy a home and

11:42

move , and so now

11:44

when we're here in our home and

11:47

we get frustrated about certain

11:49

things aspects of the house I

11:51

hate our refrigerator . With a fiery passion

11:54

, I wasn't able to buy a brand new refrigerator

11:56

when we moved in . I hate our refrigerator

11:58

. I say it all the time . I hate it . And

12:01

I talked to the refrigerator itself and I say I hate you so

12:03

much , but

12:05

I have a refrigerator . You know

12:07

like there's people that

12:09

only have a small like

12:11

box . You know , like they don't

12:13

have everything . My

12:16

kids destroyed the living room the

12:19

other day . Building a fort destroyed it . Then they

12:21

left it like that , but

12:23

they actually do have a living room to play in . We

12:25

had such a small setting

12:27

when we were in our apartment totally

12:29

different . You know their bedrooms

12:31

themselves . They have these full , beautiful

12:34

closets and I always keep them really nicely . The

12:36

girls go in there , pick out their own clothes . I

12:39

get mad that they throw everything everywhere

12:41

, but at the same time I'm like but they have this space

12:43

to grow into . You know

12:45

there's so much to it . I

12:48

was pissed off about our dryer , that

12:50

our dryer is eating some

12:52

of my spaghetti straps and the girl's spaghetti straps

12:54

. So I got , I got us a fresh clothes for the

12:56

summer and again , another thing

12:58

to be grateful for , because I couldn't do that before it

13:03

was eating our spaghetti straps . The dryer , and

13:05

my husband just reminded me . Well , do you

13:07

remember having to lug all the laundry down to the basement

13:10

? And you

13:12

know , deal with other people taking your clothes

13:14

out of the washer and dryer because they want to put their

13:16

clothes in , because you didn't wash it fast enough , and

13:18

then if you left it down there for too long , like the bugs

13:20

will get into it and this and that . And he

13:22

reminded me about how terrible it is was

13:25

before and I was like all right , I

13:27

can deal with the fact that our dryer is old at

13:29

this house for now , until I can replace

13:31

it and eat my spaghetti straps , because it's not

13:33

in a basement , it's not a scary gross basement

13:35

, it's in my home . So there's

13:39

so much more to

13:41

be grateful for that happens

13:44

in our daily lives that we really

13:46

just never think about . So I'm challenging

13:48

you here today on this episode

13:51

. Don't

13:53

the thing no

13:55

, let me . Let me rephrase that Not don't , immediately

13:59

today , when you get pissed

14:01

off about something oh

14:04

my God , air conditioning in my car doesn't work

14:06

. You

14:10

have a car . How many people

14:12

do you drive past at the bus stop waiting

14:15

for the bus because they don't have a car ? They

14:21

have to wait outside . They have to leave their house two hours early

14:23

, sometimes for work , because they don't have a car . Oh my God , you

14:25

know the . I have to go out there

14:27

and I have to vacuum our pool . You

14:31

have a pool . You

14:33

have a pool , yeah , and it

14:36

entails work , but you have one . Oh

14:39

my gosh , there's mosquitoes in the backyard . The

14:41

backyard is overrun with mosquitoes . You

14:44

have a backyard . Do

14:46

you see where I'm going with this ? Like , oh

14:49

my God , I'm so sick and tired of having to cook

14:51

food for everybody . That's my , that's actually my complaint . I'm

14:54

just going to share that . Oh my God , I'm so sick and tired

14:56

of having to cook food for everybody . I

14:59

have a family there . There's all these

15:01

different levels of there

15:05

. There's all these different levels

15:07

of like complaints that we have

15:09

that you can counter with a . Well

15:12

, I can be grateful because I have this . I

15:15

tried to record outside this morning and

15:18

my mic wasn't working , which I

15:20

shared , and there was also bugs and flies and a

15:22

giant spider like hanging out right in front of me , so I had to come back inside

15:24

and I was a little bit annoyed and I was like hanging out right in front

15:26

of me . So I had to come back inside and

15:28

I was a little bit annoyed and I was like oh God , it's

15:30

ridiculous , but I laugh

15:32

at myself because I'm like , well , yeah , sure

15:35

it's a little annoying and convenient because I had to come back

15:37

inside and figure out what was going on with my mic , but I

15:40

have a yard to sit in that I went

15:42

out to this morning Never had that . When

15:45

my kids were little , we were in an apartment and

15:48

the backyard was shared with people who had

15:50

dogs and didn't clean up after them . You

15:53

hear what I'm getting at Like I'm

15:55

probably going to lose my , my , my shit today

15:57

. I'm going to lose it today because I'm working

15:59

from home , my whole family's home today

16:01

. Kids are home on summer break . My , my , my husband's

16:04

here to quote unquote , watch them . And I say

16:06

quote unquote cause

16:11

you all know what I mean , I know

16:13

, you know what I mean . I don't have to explain it . I'm

16:15

definitely gonna lose it

16:17

because I have to concentrate , I have to

16:19

be in meetings . I

16:25

work from home . That's a massive privilege , massive , especially since , like , a lot of folks are going

16:27

back to hybrid . People are being forced back into their offices at this

16:29

point because there's like companies don't want

16:32

to have people remote , which I really don't

16:34

understand why . And I'm going to digress for a minute

16:36

because myself

16:38

and my colleagues and almost every single person

16:40

I know that works from home really works

16:43

very hard . Even

16:46

if they take a break during the daytime for like random

16:48

stuff , like they hop back on at night , like myself

16:50

included . Like if I lose an hour during the day because

16:53

of whatever , I make sure that

16:55

I make that time up and I make sure work doesn't

16:57

suffer . So I'm a little surprised that people are

16:59

being forced back into the offices . But nevertheless

17:01

, just saying so

17:04

, for everything you do today , I

17:07

do take , I do challenge you and I'm going to do the

17:09

same thing and I'm interested in hearing from you guys

17:11

on , like , if it worked and if it helped to change

17:13

your thinking . Everything

17:15

you go through today and every time you get frustrated , I want

17:18

you to take a minute , let it , let

17:20

it sink in . What are you complaining about and

17:22

what's the polar opposite , and

17:24

let me know if it's changed your

17:27

day . Do it over the next

17:29

couple of days . I'm very interested in hearing if

17:31

anyone tries this out as an experiment and

17:34

how it might potentially change and shift

17:36

how you are

17:38

as a person , because you're focusing

17:40

on yeah , I'm pissed off , but you know what I

17:43

used to have nothing . I'm

17:46

pissed off that I have to , like , clean up after all my kids

17:48

or I'm pissed off that my kids made this huge mess . Your kids

17:50

are healthy and running around . That's

17:53

what they're supposed to do . They're supposed

17:56

to make a mess , which somebody is going to have to

17:58

remind me about that later , because it's going to happen All

18:01

right . So on that note , I'm going to let everybody go

18:03

. Summer series is meant to be shorts

18:05

and I'm going a little long on this one

18:07

. I hope you all have a great day

18:10

and I

18:12

will see you on the next one . Take care .

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