Episode Transcript
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0:00
I hear from lots of people every
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day who are concerned about how their
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diet is affecting their health. They
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need answers based on facts, in
0:09
other words, from the peer-reviewed medical
0:12
literature, and that is
0:14
what I'm here for. Welcome to
0:16
the Nutrition Facts Podcast. I'm
0:19
your host, Dr. Michael Greger. Today
0:22
we explore the possibilities of how we
0:24
might have control over
0:26
our own death, retaining
0:28
dignity, privacy, pain relief, and
0:31
we start with a close look
0:33
at hospice. We have all
0:35
sorts of detailed stats about dying, but
0:38
little about the experience of death.
0:41
For the minority who die
0:43
under the care of palliative care teams,
0:46
one's death could probably be described as
0:48
good, but there's a suspicion that for
0:50
the majority who die in hospitals
0:52
or nursing homes, the experience is bad.
0:55
And that's where most people die.
0:57
In spite of widespread preference to
1:00
die at home, in
1:02
almost all populations, most deaths
1:04
occur in institutions. And
1:06
this doesn't just have consequences for the
1:08
patient, but for the
1:10
bereaved caregivers as well. Patients
1:14
with cancer who died in an intensive care
1:16
unit or hospital experienced more physical
1:18
and emotional distress and worse quality of
1:20
life at the end of life, and
1:24
their caregivers suffer five times the
1:26
odds of suffering post-traumatic stress disorder
1:28
and nearly nine times the odds
1:31
of severe prolonged disabling grief. When
1:34
researchers have looked into the care of
1:36
dying patients in hospitals, it hasn't been
1:38
pretty. Basic interventions
1:40
to maintain patient's comfort were
1:42
often not provided. Contact
1:45
with dying patients was minimal, and
1:47
the distancing and isolation worsened as
1:50
death approached. For example, a 52-year-old
1:52
woman with metastatic cancer spread to
1:54
her liver. She had
1:56
gross abdominal distention, was jaundiced and
1:58
very breathless. But alert,
2:01
her eyes were swollen and
2:03
she shed yellow tears.
2:06
The patient received no
2:08
care from the
2:10
nurses delegated to give care. Yet
2:13
in the nursing record, it was recorded that
2:15
attention had been given to her personal hygiene
2:17
and pressure areas to prevent bed
2:20
sores or hygiene in eyes, but
2:22
it was all a lie. The only
2:24
attention she got was to receive a
2:27
commode from a nursing assistant. Back
2:30
time totaled six minutes over the
2:32
four and a half hours, the
2:34
researchers kept track. In
2:36
contrast, what would a good
2:38
death look like? Retaining control,
2:41
dignity, privacy, pain relief.
2:43
You choose where, you choose how.
2:46
Emotional support, respecting your wishes, saying
2:48
goodbye, and being able to leave
2:50
when it's time to go and not
2:53
have life prolonged pointlessly. One's
2:55
best bet for all that is access to
2:58
hospice care. Palliative
3:01
care is comfort measures to relieve symptoms
3:03
and improve quality of life, utilized at
3:05
any stage of serious illness, whereas hospice
3:08
is just comfort measures when
3:10
focus shifts from curing the
3:13
disease to improving the
3:15
quality of one's last days. Hospice
3:18
is often framed as giving up, but
3:21
ironically, when you compare hospice
3:23
versus non-hospice patient survival, the
3:26
patients in hospice actually live longer.
3:30
Patients who choose hospice care live on
3:32
average about a month longer than similar
3:34
patients who do not choose hospice. Randomize
3:37
those with advanced lung cancer to early palliative
3:39
care, and they don't live
3:41
a month longer. They live two and a
3:44
half months longer. I mean, that's like the
3:46
survival benefit you might get from a standard
3:48
chemotherapy regimen. And in
3:50
fact, that's one of the ways hospice
3:52
could extend survival, by avoiding the risk
3:55
of overtreatment with chemo and its related
3:57
toxicity. There are, however,
4:00
limits to palliative care. Even
4:02
under hospice, where one would assume
4:05
excellent palliative care, there are those
4:07
who appear to unavoidably spend their
4:10
last months in uncontrollable
4:12
pain. And this
4:14
unbearable suffering, despite our best efforts,
4:17
leads to requests for ending a
4:20
patient's life prematurely. Although
4:22
physicians system suicide is gaining acceptance,
4:25
it's only legal in eight states plus
4:27
DC. In
4:29
contrast, V-S-E-D is
4:32
legal throughout the U.S. Voluntarily
4:36
stopping eating and drinking, V-S-E-D, can
4:38
be defined as a conscious decision
4:40
to voluntarily and deliberately choose to
4:42
stop eating and drinking with a
4:44
primary intention of hastening death because
4:47
of the persistence of unacceptable suffering.
4:50
I've talked about fasting to extend one's
4:53
life. What about
4:55
fasting to shorten? We
4:58
hear a lot about physician-assisted suicide,
5:00
but V-S-E-D has not gained nearly
5:02
as much attention. This is presented
5:04
as perplexing, since supposedly it's a
5:06
relatively peaceful and comfortable way to
5:08
die. But is it really?
5:10
How long does it take? How would
5:12
you do it? I'll talk about
5:14
the pros and cons and practical implications
5:17
next. Perhaps
5:20
in an ideal world, every patient with
5:22
a life-limiting illness would receive optimal hospice
5:24
and palliative care such that no one
5:26
would ever wish to hasten their own
5:29
death. Unfortunately, the
5:31
reality is that despite our best efforts,
5:34
some with terminal illness continue to
5:36
suffer, leading increasing number of patients
5:38
across the country to
5:41
explore V-S-E-D to
5:43
escape intolerable suffering,
5:46
voluntarily stopping eating and drinking.
5:50
Some of the pros include dying at home,
5:52
which is what most people's preference is. You
5:55
don't have to spend your fleeting hours
5:58
dealing with doctors and lawyers. There's
6:00
no waiting period in Oregon. For example,
6:02
their death with dignity act requires a
6:04
15-day waiting period before you can get
6:07
physician assistance. Whereas choosing to stop eating
6:09
and drinking would seem to afford more
6:11
control. I mean, even just knowing it's
6:14
an option can be a comfort. Those
6:17
who learn about VSCD may feel
6:19
empowered by the knowledge that they
6:21
can choose this option without seeking
6:23
anyone's permission. And because it's legal,
6:25
it can be openly discussed. Just
6:28
knowing that there's a way out
6:30
can provide relief from feelings of
6:32
desperation and entrapment, and
6:34
a feeling of control may itself be
6:36
therapeutic. It can also prevent people from
6:39
contemplating a more violent way out, and
6:41
patients don't have to feel pressured to
6:43
end their life prematurely while they still
6:45
can. Physician assisted
6:47
death with dignity laws require patients
6:49
to take the lethal drug cocktail
6:52
themselves. If you have
6:54
ALS and are worried about losing your
6:56
muscular function, you might feel the need
6:58
to end your life before you're ready
7:00
while you still have the capacity. In
7:03
fact, Dr. Kevorkian's first was a woman
7:05
diagnosed with Alzheimer's who wanted to end
7:07
it before it got too late, potentially
7:10
depriving her and her family of years she
7:12
might have still been able to enjoy. While
7:16
physician assisted suicide entails a
7:18
single instantaneous and irrevocable act,
7:21
death from VSCD occurs
7:24
over several days, allowing time
7:26
for patients to change their mind and
7:29
for healing goodbyes. But
7:31
what is it actually like? There's
7:33
lots of anecdotes floating around
7:35
describing death on VSCD as
7:37
peaceful, painless, and dignified. Fortunately,
7:40
the evidence is more than just
7:42
anecdotal. There have been several independent
7:45
studies, so let's look at the
7:47
data. Average time of death,
7:50
after stopping eating and drinking, was about
7:52
seven days, though 8% lasted more than
7:54
two weeks. And
7:58
how was it? Ask a hundred h- hospice
8:00
nurses, and on a scale of
8:02
zero, very bad death, to nine,
8:04
a very good death, the average
8:06
score, the quality of these
8:09
deaths, as rated by the nurses, was
8:11
eight. The researchers concluded that
8:13
people usually die a good death within
8:15
two weeks after stopping food and fluids,
8:18
according to the nurses, rating
8:20
those last days of life as peaceful,
8:22
with low levels of pain and suffering.
8:24
More so even than those who
8:27
chose physician-assisted suicide. This was in
8:29
Oregon, so patients could have chosen
8:31
that instead, but nearly twice as
8:34
many patients decided instead to take
8:36
matters into their own hand by voluntarily
8:39
stopping, eating, and drinking. Interestingly,
8:41
loved ones seemed to agree with
8:44
voluntary refusal of food and fluids
8:46
perceived as carrying less emotional baggage
8:48
for the family, more letting go
8:51
than taking more active approach. A
8:54
study in the Netherlands that interviewed confidants,
8:56
like friends and family that witnessed it,
8:58
found that most considered it
9:00
quote-unquote dignified death. Hospice
9:03
physicians seemed to agree, with
9:05
nearly 90% surveyed reporting that
9:07
their VSCD patients experienced peaceful
9:10
and comfortable deaths. The
9:13
state of terminal dehydration may even
9:16
have some analgesic effects and pain-killing
9:18
effects, presumed to be due to
9:20
the release of endorphins, which act
9:22
as natural pain blockers. So, concluded
9:25
this review, VSCD may reflect all
9:27
12 principles of
9:29
a good death, retaining control
9:31
and dignity. One
9:34
of the most famous accounts was
9:36
Dr. David Eddy's description of his
9:38
own mother's VSCD. My
9:40
mother was elated. The
9:43
next day happened to be her 85th birthday,
9:45
which we celebrated with a party, balloons and
9:47
all. She was beaming from
9:49
ear to ear. She
9:51
had done it. She had found the way. She
9:54
relished her last piece of chocolate
9:56
and then stopped eating and drinking.
9:59
The last four days, My mother
10:01
greeted her visitors with her first smile
10:03
she had shown for months. She
10:05
energetically reminisced about the great times she had
10:07
had, about all the things she was proud
10:09
of. She especially hoped I
10:12
would tell you about her traveling alone across
10:14
Africa at the age of 70 and surviving
10:16
a capsized raft on Wyoming Snake River at
10:18
82. She also found
10:20
a calming self-acceptance in describing things in
10:23
which she was not proud. She
10:25
slept between visits but woke up brightly
10:28
whenever she was touched, to share
10:30
more of her memories and to say
10:32
a few more things she wanted us to know. On
10:35
the fifth day it was more difficult to wake her. When
10:38
we would take her hands, she would
10:40
open her eyes and smile, but she
10:42
was too drowsy and weak to talk very much. On
10:44
the sixth day we could not wake
10:46
her. Her face was relaxed and her
10:49
natural smile. She was breathing unevenly
10:51
but peacefully. We held
10:53
her hands for another two hours until
10:55
she died. Without hoarding pills, without
10:58
making me into a criminal, without putting
11:00
a bag over her head and without huddling
11:02
in a van with a carbon monoxide machine,
11:05
she had found a way to bring her life
11:07
gracefully to a close. Right
11:10
about this, David. Tell others how well this
11:12
worked for me. I'd like this to be
11:14
my gift. Whether they
11:16
are terminally ill, in intractable pain, or
11:18
like me, just knowing
11:21
that the right time has come for them,
11:23
more people might want to know that this
11:25
way exists and maybe more physicians
11:27
will help them find it. We
11:31
would love it if you could share with
11:34
us your stories about reinventing your health through
11:36
evidence-based nutrition. Go to
11:38
nutritionfacts.org/testimonials. We may be able
11:40
to share it on social
11:42
media to help inspire others.
11:45
If you see any graphs, charts, graphics,
11:47
images, or studies mentioned here, please go
11:49
to the Nutrition Facts Podcast landing page.
11:52
There you'll find all the detailed information you
11:55
need, plus links to all the sources we
11:57
cite for each of these topics. My
12:00
latest book, How Not to Age, is out now,
12:03
premiering at number two on the New York Times
12:05
Best Sellers list. Check
12:07
it out at your local public library. And of
12:09
course, all the proceeds of the sales of all
12:11
my books goes directly to charity. nutritionfacts.org
12:14
is a nonprofit, science-based public service where
12:17
you can sign up for free daily
12:19
updates on the latest in nutrition research,
12:21
with bite-sized videos and articles. Everything
12:24
on the website is free. There
12:27
are no ads, no corporate sponsorships,
12:29
no kickbacks, strictly non-commercial. I'm
12:32
not selling anything. I just put it
12:34
up as a public service, as a
12:36
labor of love, as a tribute to
12:38
my grandmother, whose own life was saved
12:40
with evidence-based nutrition.
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