Podchaser Logo
Home
Rare Disease Mom- Neurological Disorder, CTNNB1 syndrome.

Rare Disease Mom- Neurological Disorder, CTNNB1 syndrome.

Released Friday, 5th March 2021
Good episode? Give it some love!
Rare Disease Mom- Neurological Disorder, CTNNB1 syndrome.

Rare Disease Mom- Neurological Disorder, CTNNB1 syndrome.

Rare Disease Mom- Neurological Disorder, CTNNB1 syndrome.

Rare Disease Mom- Neurological Disorder, CTNNB1 syndrome.

Friday, 5th March 2021
Good episode? Give it some love!
Rate Episode

After moving to Washington and marrying her husband, they were blessed with the birth of their son, Ford Canon Parks.  

When she learned that Ford had been born with an extremely rare genetic condition – CTNNB1 syndrome – she dove into the world of advocacy.  

Now, she is the host of her own podcast, Once Upon a Gene, where she speaks to others about their journey through life with rare disease. 


Www.onceuponagene.com


https://instagram.com/onceuponagene.podcast?igshid=1uy5qkpbxvafp

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*.  💖Together is a beautiful place to be💖  

Audio Podcast: https://anchor.fm/mommajuice

Video Podcast: https://urlgeni.us/youtube/channel/mo...​ 

Instagram: https://www.instagram.com/mommajuicep...​ 

TikTok: https://vm.tiktok.com/ZMeJ1y223/​ 

Twitter: https://twitter.com/juice_momma​ 

LinkedIn: www.linkedin.com/in/mommajuicepodcast  

Facebook Group: https://www.facebook.com/groups/70245...​ 

Facebook Page: https://www.facebook.com/MommaJuicePo...​ 

Website: https://www.mommajuicepodcast.com​ 

Show More

Unlock more with Podchaser Pro

  • Audience Insights
  • Contact Information
  • Demographics
  • Charts
  • Sponsor History
  • and More!
Pro Features