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The Power of Art: Alex LeBoeuf's Creative Impact on the Myotonic Dystrophy Community

The Power of Art: Alex LeBoeuf's Creative Impact on the Myotonic Dystrophy Community

Released Wednesday, 1st May 2024
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The Power of Art: Alex LeBoeuf's Creative Impact on the Myotonic Dystrophy Community

The Power of Art: Alex LeBoeuf's Creative Impact on the Myotonic Dystrophy Community

The Power of Art: Alex LeBoeuf's Creative Impact on the Myotonic Dystrophy Community

The Power of Art: Alex LeBoeuf's Creative Impact on the Myotonic Dystrophy Community

Wednesday, 1st May 2024
Good episode? Give it some love!
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In this episode of 'Art Heals All Wounds,' I share a personal story about my daughter's diagnosis with myotonic dystrophy. How I wished to meet someone like today’s guest! Alexandra LeBoeuf, a young Canadian artist and myotonic dystrophy advocate, discusses how her artwork and personal experiences have helped create a support network and raise funds for research. Alex's story illustrates the impact of art in connecting individuals with shared experiences, particularly through her creation of a logo symbolizing strength for the myotonic dystrophy community. Together, Alex and I explore themes of resilience, creativity, and the importance of community support for those living with myotonic dystrophy or other rare diseases.

 

00:00 Introduction to Art Heals All Wounds

00:46 A Personal Journey with Myotonic Dystrophy

02:12 Spotlight on Alexandra LeBoeuf: Art, Advocacy, and Myotonic Dystrophy

02:58 The Power of Community and Creativity

04:34 Alex's Creative Journey and Impact

11:20 Exploring the Therapeutic Role of Art and Music

20:36 Building Connections Through Creativity

30:03 The Importance of Support Groups and Advocacy

31:30 Conclusion and Thanks

Donate for a cure for Myotonic Dystrophy!


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